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-   -   Hello everyone (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/214553-hello.html)

kcbarton70 01-09-2015 04:06 PM
Hello everyone
 
I am very new to RSD!
I am a nurse and sustained a crush injury to my left arm in October. I was told that it was sprained and would get better...it didn't. I started e experiencing paresthesias in my Left arm with minimal pain in the hand. I was referred to a neurologist. By the time I had the appointment, I was experiencing swelling, discoloration, sensitivity to touch and cold. I was prescribed Norco, Mobic, Neurontin. I was then told that the physician suspects RSD based on my symptoms. Upon follow up, the paresthesias improved but the pain was unreal. I was scheduled and had a stellate ganglion nerve block that was unsuccessful. The doctor told me to read up RSD but was remiss to make the diagnosis as this is a work injury... I have not seen him since. He has refilled my prescriptions and has referred me for a second opinion. I have been at home for 2 months with no office visits. I have started recently having extremity "twitching" which scares me to death. I am scared of becoming dependent on the Norco. I feel so alone and cannot even express to my husb:Bawling::Bawling:and what I feel. Can somebody give me some insight?

Russell 01-09-2015 05:51 PM
Hi KC,
I too am staying away from opiates. My neurologist was understanding to my concerns and she had me try different cocktails of non opiates until we found the right mixture.
I take 900 mgs of Gabapentin, 60 mgs of Cymbalta and 50 mgs of Amitriptyline.
Everyone is different in what works but it's worth the effort to find your own.
I'm not saying to do my cocktail just want you to know there's hope out there.
I'm sorry for your reason for being here but glad you found us. We're a great bunch that will listen, share and even try to help.
So welcome to the neighborhood.
I hope you find relief...

LIT LOVE 01-09-2015 10:42 PM
Quote:
Originally Posted by kcbarton70 (Post 1117264)
I am very new to RSD!
I am a nurse and sustained a crush injury to my left arm in October. I was told that it was sprained and would get better...it didn't. I started e experiencing paresthesias in my Left arm with minimal pain in the hand. I was referred to a neurologist. By the time I had the appointment, I was experiencing swelling, discoloration, sensitivity to touch and cold. I was prescribed Norco, Mobic, Neurontin. I was then told that the physician suspects RSD based on my symptoms. Upon follow up, the paresthesias improved but the pain was unreal. I was scheduled and had a stellate ganglion nerve block that was unsuccessful. The doctor told me to read up RSD but was remiss to make the diagnosis as this is a work injury... I have not seen him since. He has refilled my prescriptions and has referred me for a second opinion. I have been at home for 2 months with no office visits. I have started recently having extremity "twitching" which scares me to death. I am scared of becoming dependent on the Norco. I feel so alone and cannot even express to my husb:Bawling::Bawling:and what I feel. Can somebody give me some insight?
When you say the SGB was unsuccessful do you mean that there was no response? There was no pain relief whatsoever? Or just not lasting pain relief? No droopy eye and no reaction to your larynx?

HeidiB 01-10-2015 01:43 AM
re
 
Hi Kcbarton70
sorry you are here due to RSD but as Russell said everyone is amazing here, actually if it werent for the people here who share, vent give advice & are here no matter what I dont know what I'd do. it's not an easy thing as we all know too well but as Russell said find what works for you if you have a doc who is willing to work with you listen to you which is a HUGE thing stick with them as long as possiable trust me on that & it helps you having nursing backround so u should I hope have an easier time with doctors. it may take several times of several meds to find what works but know you ALWAYS HAVE HERE if nothing else we all understand. I wish you best of luck and feel free to ask any questions the more knowledge you have the better for you hun.
HEIDI

stillsmiling 01-10-2015 05:20 PM
We know what it feels like,
 
I am also so sorry that you are here due to RSD, but it is so true. This is a very wonderful place to go where there are others who have encountered such similar situations. We are here for you. Best wishes. We will all be here for the good and the bad.
Quote:
Originally Posted by kcbarton70 (Post 1117264)
I am very new to RSD!
I am a nurse and sustained a crush injury to my left arm in October. I was told that it was sprained and would get better...it didn't. I started e experiencing paresthesias in my Left arm with minimal pain in the hand. I was referred to a neurologist. By the time I had the appointment, I was experiencing swelling, discoloration, sensitivity to touch and cold. I was prescribed Norco, Mobic, Neurontin. I was then told that the physician suspects RSD based on my symptoms. Upon follow up, the paresthesias improved but the pain was unreal. I was scheduled and had a stellate ganglion nerve block that was unsuccessful. The doctor told me to read up RSD but was remiss to make the diagnosis as this is a work injury... I have not seen him since. He has refilled my prescriptions and has referred me for a second opinion. I have been at home for 2 months with no office visits. I have started recently having extremity "twitching" which scares me to death. I am scared of becoming dependent on the Norco. I feel so alone and cannot even express to my husb:Bawling::Bawling:and what I feel. Can somebody give me some insight?


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