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-   -   Mystery (https://www.neurotalk.org/peripheral-neuropathy/215105-mystery.html)

tamimom 01-22-2015 01:16 PM

Mystery
 
My husband had cervical fusion surgery 5 years ago. Neck pain was relieved but 2 months after surgery his toes started burning like they were dipped in hot oil. It was horrible. He was put on Lyrica and valium which alleviated some of the pain. Nerve conductivity tests were fine, diabetes test -fine, circulation test- fine, biopsy test-fine. Then, we found out that his fusion had not fused so he had to have another surgery. This was 3 years ago. Fusion worked this time. Miraculously he had no more burning toes and we attributed his prior pain to the original failed surgery. However, here we are, 3 years after a successful surgery and he is slowly starting to feel the burning in his toes again. I don't have any idea what to do or who to turn to because last time his neurologist could not figure out why it was happening and just treated the symptoms. Unfortunately ,the medication came with nasty side effects. I don't feel like the neurologist would have any answers this time either and that is frustrating. I know so many of you have dealt with these frustrations and I am hoping that you can give me some insight, suggestions, or even a glimmer of hope. We live in the Portland, OR area. Thanks again in advance.

zkrp01 01-22-2015 01:53 PM

With three years gone by
 
Quote:

Originally Posted by tamimom (Post 1119703)
My husband had cervical fusion surgery 5 years ago. Neck pain was relieved but 2 months after surgery his toes started burning like they were dipped in hot oil. It was horrible. He was put on Lyrica and valium which alleviated some of the pain. Nerve conductivity tests were fine, diabetes test -fine, circulation test- fine, biopsy test-fine. Then, we found out that his fusion had not fused so he had to have another surgery. This was 3 years ago. Fusion worked this time. Miraculously he had no more burning toes and we attributed his prior pain to the original failed surgery. However, here we are, 3 years after a successful surgery and he is slowly starting to feel the burning in his toes again. I don't have any idea what to do or who to turn to because last time his neurologist could not figure out why it was happening and just treated the symptoms. Unfortunately ,the medication came with nasty side effects. I don't feel like the neurologist would have any answers this time either and that is frustrating. I know so many of you have dealt with these frustrations and I am hoping that you can give me some insight, suggestions, or even a glimmer of hope. We live in the Portland, OR area. Thanks again in advance.

you might think that the burning toes may not be caused by the surgery this time. Many have to eventually choose between side effects and the pain associated w/Neuropathy. I myself will retry Gabapentin if things become intolerable. I had side effects but they were not so bad that they couldn't be handled. As it is, I can tolerate the burning until bedtime and I use Mortons Epsom Salt Lotion to quell the burning enough to get to sleep. If you lurk, read, and search, you will learn about excercise and nutrician and others trials and failures. Good Luck, Ken in Texas.

Kitt 01-22-2015 02:38 PM

Welcome tamimom. :Wave-Hello:

tamimom 01-29-2015 02:12 AM

Thank you for the welcome. :)

tamimom 01-29-2015 02:14 AM

Quote:

Originally Posted by zkrp01 (Post 1119710)
you might think that the burning toes may not be caused by the surgery this time. Many have to eventually choose between side effects and the pain associated w/Neuropathy. I myself will retry Gabapentin if things become intolerable. I had side effects but they were not so bad that they couldn't be handled. As it is, I can tolerate the burning until bedtime and I use Mortons Epsom Salt Lotion to quell the burning enough to get to sleep. If you lurk, read, and search, you will learn about excercise and nutrician and others trials and failures. Good Luck, Ken in Texas.


Thanks Ken!


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