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juliejayne 01-24-2015 10:07 AM

Sfemg
 
Does anyone have any reliable information on SFEMG.

I have just been through a nightmare experience with this test, and it was so bad that they were not able to complete the test.

I had not even been aware that they would test around your eyes, which seemed to me rather pointless, when my major problems are in my arms and legs.

rockenmama 01-24-2015 10:51 AM

Quote:

Originally Posted by juliejayne (Post 1120003)
Does anyone have any reliable information on SFEMG.

I have just been through a nightmare experience with this test, and it was so bad that they were not able to complete the test.

I had not even been aware that they would test around your eyes, which seemed to me rather pointless, when my major problems are in my arms and legs.

I don't have any experience with that one but I understand it's longer than the repetitive stim nerve test and that was hard for me so I can't imagine. Sorry it was do hard on you!!

Plantagenet 01-24-2015 02:17 PM

Yes most unpleasant when it feels like some one is sticking a needle in your eye I did not enjoy it one little bit.

AnnieB3 01-26-2015 03:01 AM

JJ, More information please!!!

Was it just to painful?

I wonder if you have a nerve problem. Some people who do have a harder time with a SFEMG.

I'm sorry it was so horrible.

:hug:
Annie

juliejayne 01-26-2015 04:52 AM

I warned the Doctor that I had a phobia of Hospitals, doctors and particularly NEEDLES!

He gave me a typical story of how many patients fall asleep during the procedure... he works on children, everyone is happy when they leave...yada yada.

The first needle, set off my panic... tears, shortness of breath. He kept saying "think of something calming" Yeah like that was going to help.

The second needle pushed me to the limit, I could feel my eye twitching... ok. But then he started moving it around and the pain went through the roof.

Screaming, uncontrollable sobbing, hyperventilation, to the point where my hands were paralysed. He gave up. Not much else he could do really.

It took nearly an hour before I was able to stumble out of the waiting room. Never again.

AnnieB3 01-26-2015 12:14 PM

JJ, It's normal to have some fears in life. It sounds as though the fear you have of hospitals/doctoring/pain is something that you should really try to get some help for (not being condescending at all!).

It's when fears control our lives that we all need help.

I know that you said meditation didn't work for you, but that is one great tool! I used it while I had my SFEMG. I had a horrendous one where the signal is nonstop for five minutes. I told the doctor that I would be making "unhappy noises," possibly even unearthly ones, but to keep going until I said to stop. ;)

They can't sedate you during the SFEMG because they need cooperation for the test. At some point, a doctor has to go on clinical evidence and response to treatments.

I hope you'll take some time to recoup and think about what's really important to you as you move on from here. Life is too short to let our fears get in the way of living.

:grouphug:
Annie

juliejayne 01-26-2015 01:31 PM

Thinking about it now after the event... why can't they sedate you for SFEMG. If I was unconscious, my muscles and nerves would react just the same... wouldn't they?

As regards getting treatment for my fear of needles. Hmm, any treatment that might be available would be in a hospital (my 2nd fear) by a doctor (my 3rd fear). Without trying to be flippant... it just ain't going to work.

Though this last years of doctors, hospitals and even needles, has reduced my fear a lot. But these needles in the face were just too much. If they had done it in the leg or arm... I might have managed.

AnnieB3 01-27-2015 06:30 PM

Aren't there any psychologists in private practice in your country?

#1: They aren't doctors.
#2: They often practice in office buildings, with cozy, comfy surroundings to make you feel safe!

The doctors in France use magnets for the SFEMG. That would do away with one of the fears, but they do practice in a clinic. And sometimes they don't speak English.

There are also people around the world who are experts at teaching meditation. It is not as simple as sitting still and breathing deeply! It's a pretty amazing skill to have. I know we talked about it before, but it takes practice to get to that place where you can instantly put yourself into a Zen state. I can do it within seconds, and I've been through a s-load of trauma.

Perception is a powerful thing. And most of the time it has to do with what we choose to believe. I hope that doesn't offend you! I know what PTSD is and it's not so easily gotten over just by saying, "I don't believe in it!" But even that can be gotten over—or at least managed.

I hope you can find someone to help.

:hug:
Annie

juliejayne 01-28-2015 09:25 AM

Yes there probably are. But private costs money. My health insurance is not going to pay for it.

And ultimately I have managed to get through most of what I have had to endure this year. Even having blood taken for numerous tests. But needles around the eyes was simply too much. I might even have gotten through that if they had left me alone with soothing music for half an hour after the first needle. But sticking the 2nd one in straight away and then twiddling it around until they found where it hurt.... no.

And I have nothing against meditation. It must be great for those who can do it. But with the constant static of tinnitus in my head, I long ago found that the best thing was to keep constant varying noise around me... radio or TV normally. Maybe I am wrong, but I don't know of any meditation technique that includes constant music and movement?

Heat Intolerant 01-28-2015 01:19 PM

Type "single fiber cannot be performed under sedation" without the quotes into Google. There is a book in which they say it can't be done. It doesn't say why.

To me, it sounds like what you experienced was just too much pain. They don't measure pain too well (or even if they can, it sounds like they don't bother). Whatever you may have been thinking or been afraid of, if pain for you is that awful when it actually occurs, I think there may be a physiological reason.


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