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-   -   Prolonged post concussive syndrome: help! (https://www.neurotalk.org/new-member-introductions/215980-prolonged-post-concussive-syndrome-help.html)

Lhanlin 02-11-2015 11:34 AM

Prolonged post concussive syndrome: help!
 
Hi! I have post-concussive headaches due to a car accident 4

years ago. I've currently moved to the Fort Wayne, IN area and I'm looking for a

doctor. The process is never fun, and I'm treated like an opiate junkie after

repeatedly asking to find non-narcotic medications, or better yet: a treatment

plan. (What a concept!)

I'm disabled due to this condition. I have several symptoms, but the

headache, depression, anxiety and noise/light triggers are keeping me close to

home. Nice to find a home here.

QUESTION TO GROUP: Has anyone with similar symptoms found relief on

anything non-narcotic? Current dr wants to do Botox shots, and not feeling

comfortable with it. Please share your experiences as I formulate a new plan of action.

Thanks,
Laura Hanlin

Feck 02-11-2015 01:46 PM

Welcome, Laura Hanlin. May you find what you seek while here.

Lara 02-11-2015 01:49 PM

Hello Laura,

Welcome to the NeuroTalk Support Groups.

We have a
Traumatic Brain Injury and Post Concussion Syndrome Forum
here. (edited to add: I see you've found it already ;) )

You might like to repost over there to get some information and support from the members there.

You'll find you're not alone with your symptoms.

take care.

Kitt 02-11-2015 02:09 PM

Welcome Lhanlin. :Wave-Hello:

Littlepaw 02-11-2015 02:56 PM

Welcome Laura!

Botox is turning out to be a good option for various pain issues but I can understand your reluctance. I take a low dose of nortryptiline for nerve pain and find it very helpful. It is dispensed frequently for migraine. A plus is my mood seems to be better even though I only take 20mg at bedtime, much lower than the antidepressant dose. I can honestly recommend the TCA family as an alternative for opiate pain meds. I hope you find relief soon.

Sending Healing Love, Littlepaw. :hug:

Darlene 02-12-2015 01:58 AM

Great to meet you!!
 
Laura,

:Wave-Hello: Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

Smayotte 02-19-2015 04:36 PM

Quote:

Originally Posted by Lhanlin (Post 1123388)
Hi! I have post-concussive headaches due to a car accident 4

years ago. I've currently moved to the Fort Wayne, IN area and I'm looking for a

doctor. The process is never fun, and I'm treated like an opiate junkie after

repeatedly asking to find non-narcotic medications, or better yet: a treatment

plan. (What a concept!)

I'm disabled due to this condition. I have several symptoms, but the

headache, depression, anxiety and noise/light triggers are keeping me close to

home. Nice to find a home here.




QUESTION TO GROUP: Has anyone with similar symptoms found relief on

anything non-narcotic? Current dr wants to do Botox shots, and not feeling

comfortable with it. Please share your experiences as I formulate a new plan of action.

Thanks,
Laura Hanlin

Hi Laura,

Lafayette Indiana here! My daughters neurologist has recommended botox as well, if IF physical therapy doesn't work. She is currently taken topamax and baclofen for the headaches. We had to play with the doses a little bit but at this point her headaches are tolerable. She hasn't ever used a narcotic for pain as it can make you dizzy, nauseous and tired. So we are thinking along the same line that you are and making a treatment plan. We are 4 months post concussion and it is work every day to deal with it. I do not allow her to drive anymore and she has to be home bound for school. I think every one keeps saying it takes time. I hope that you can find some pain relief.

Darlene 02-20-2015 02:00 AM

Nice to meet you!!
 
Smayotte,

:Wave-Hello: Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

Kitt 02-20-2015 10:19 AM

Welcome Smayotte. :Tip-Hat:

marv1959 04-21-2015 04:44 PM

Torodol
 
Quote:

Originally Posted by Lhanlin (Post 1123388)
Hi! I have post-concussive headaches due to a car accident 4

years ago. I've currently moved to the Fort Wayne, IN area and I'm looking for a

doctor. The process is never fun, and I'm treated like an opiate junkie after

repeatedly asking to find non-narcotic medications, or better yet: a treatment

plan. (What a concept!)

I'm disabled due to this condition. I have several symptoms, but the

headache, depression, anxiety and noise/light triggers are keeping me close to

home. Nice to find a home here.

QUESTION TO GROUP: Has anyone with similar symptoms found relief on

anything non-narcotic? Current dr wants to do Botox shots, and not feeling

comfortable with it. Please share your experiences as I formulate a new plan of action.

Thanks,
Laura Hanlin


Torodol was a godsend for me the last five years of my cluster headaches. After 15 years of morphine, Demerol, Nubain and egotomine with oxygen treatments someone offered me Torodol. It worked for about 80% of my events


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