NeuroTalk Support Groups - Need some ideas

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Need some ideas (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/216033-ideas.html)

Always_Believe

02-12-2015 09:39 AM

Need some ideas

So this RSD/CRPS is a new diagnosis for me and I'm trying to learn everything I can. I am making some 'modifications' to allow for more mobility/independence. One of my problems is I think I am pushing too hard. It may be that I haven't been as mobile for the past week or so & in being more mobile the past 2 days, my muscles are freaking out. I need some suggestions...

Spasms. Ugh. The spasms. I have this little muscle in the arch of my foot that is constantly spasming/twitching. Is there a trick to get it to stop?

I also need some suggestions on cleaning floors. Vacuuming, sweeping, mopping. I tried but I cannot seem to do any of these tasks. Is there a particular vacuum that is super easy/light that is good on tile floors too? I have a shark steam mop, but it broke in the move & I'm not sure that would be the best option. Does anyone have a roomba &/or a scooba?

Kevscar

02-12-2015 10:27 AM

Pace yourself you push too hard and you'll make it permanently worse. Don't know if you can get them over there but we got Vax Mach Air which I can use one handed still need to take a break halfway through the room. Also got steam mop but again need a break

Always_Believe

02-12-2015 10:48 AM

Thank you! It looks like the only place I can find it is on eBay.

Looking more into a robot vac since the standing/walking is my biggest problem.

I go to the ortho tomorrow to evaluate if there is a 'new' knee injury. Next up is neuro to evaluate nerve entrapment/palsy. Hopefully my PCP will refer me to PM soon.

LIT LOVE

02-12-2015 02:05 PM

I have a Roomba and it works really wells. I can't use use a vacuum in large part due to the vibration. I also use a large floor size lint roller on the carpet for quick pickups as well.

Always_Believe

02-12-2015 03:56 PM

Quote:

Originally Posted by LIT LOVE (Post 1123672)

I have a Roomba and it works really wells. I can't use use a vacuum in large part due to the vibration. I also use a large floor size lint roller on the carpet for quick pickups as well.

Great info! I'm thinking I can have my son vacuum with a real vacuum weekly/as needed and run the roomba (although I heard the Neato XV picks up more) a few times/week to clean up after the pets. iRobot also has a scooba that I'm looking into for the kitchen.

So with the flooring issue looking like it has a solution...any tricks for spasms???

LIT LOVE

02-12-2015 09:42 PM

Quote:

Originally Posted by Always_Believe (Post 1123702)

The roomba picks up my dog's hair.

Your doc might be able to find a prescription that helps reduces spasms. My come and go, and are unpredictable.

maygin

02-13-2015 10:20 PM

Spasms

I don't have them from the CRPS, but I've found medications like Flexeral (sp?) helpful in the past. Is ask your PCP for suggestions. They are usually well tolerated and not very expensive. Hope you find relief and a diagnosis soon!

maygin

02-13-2015 10:32 PM

Rest

I meant to mention - make sure to rest. My orthopedist, a leading leading expert on CRPS, says restorative sleep is the most important thing for recovery. Please listen to your body and rest when your body needs it. Cleaning can wait - your health can't. I wish I had done that early on.

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