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MS/Chairi Malformation?
Anyone had experience with both these disorders? Suppose to both be neurological. The second is malformation of the skull causing symptoms that can mimic MS.
Recently I've been diagnosed with Eagles Syndrome which can have symptoms like MS also (but of course I still have lesions on my brain). It is a calcification of a bone at the base of the skull. It can calcify and elongate the bone. This causes havoc with the nerves and blood vessels in the neck. It is very rare. I'm in the midst of educating myself about the Eagles Syndrome, and many people complain of Chairi Malformation......then they talk about MS. I'm getting confused. Anyone have any of these extra issues with their MS? |
I knew of two people who had their DX changed from MS to Chairi Malformation.
There was an operation to correct the Malformation, talked about, but I don't know the outcome of either, because they both seemed to disappear from the Internet/forums? Would love to know if the operation was done or too risky - or, if it worked or not? |
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