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Increase Mestinon
Just yesterday, I called my Nuro about my symptoms starting to get a little worse. I have always had milder symptoms than some folks, But still a problem.
He had me increase my Mestinon from 4 (60m) a day to 5. No problem with that, as I have heard several of you folks talking about increase in dosage. He surprised me though with the statement that I could take every 31/2 hours or if I wanted, I could take 2 (60m) in the A.M. and then the other 3. I have not heard that before. I wondered if anyone had taken it like that. I will be interested to hear from anyone about that. FREDH |
My neuro lets me take my mestinon on my own schedule, but if I take it too close together, I have some bad gastro problems. That will probably be your determining factor. My usual schedule is 60 every 3-4 hours (depending on how I'm feeling). If I go much closer than that, I have problems. However, some people can take it closer and in much higher dosages and have no problems. I think it all depends on your body.
Good luck on finding the right schedule for you! |
Though there are average numbers you can use in the beginning, which most neurologists will, mestinon dosage is very personal.
It depends on a whole bunch of things, what you eat, drink, other meds, your age, gender, weight, metabolism, etcetera. I think mestinon has this more compared to other drugs, probably because it works so fast and short? Anyway, my friend who has MG is better off with 3 times 120 mg. I on the other hand, rather take it more often and less, so around 7 times a day, +/- 90 mg a take. It can even change in time, I used to take way less because more simply gave me side effects without extra strength. I took 3x 60 and more gave signs of cholinestic issues, which cause weakness too. And, I used to take it on set time ("every 3 hours"), but now those years later I've learned to take it when I feel the last dose is wearing out. Always keep in mind too much mestinon (which again is a very personal dosage) can cause weakness too. I hope the 5 a day works for you! |
Dosage
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I can't take two mestinon at once. I take 60mg when I wake up, then a second pill one hour later. After that I take them 2hr and 15min apart for a total of 7 per day on most days. It is just different for everyone I think
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FREDH |
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Thanks FREDH |
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Thanks--FREDH |
I have been using 1/2 of a tablet (so 30 mg) every couple of hours. The side effects are less and it seems to help a lot.
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Thanks FREDH |
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