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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   RSD And Flare Up (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/217004-rsd-flare.html)

Acoya143 03-06-2015 04:02 AM

RSD And Flare Up
 
Hi everybody. I'm a newbie and looked every where on the site for answer to this one. Has anybody had their RSD/CRPS flare up when their pain Medici e was increased?. It happened to to me and now I am on zero be a use of my flare up. This might help explain why I am awake at 4 am...😕

Acoya143 03-06-2015 04:19 AM

Quote:

Originally Posted by Acoya143 (Post 1127771)
Hi everybody. I'm a newbie and looked every where on the site for answer to this one. Has anybody had their RSD/CRPS flare up when their pain Medici e was increased?. It happened to to me and now I am on zero be a use of my flare up. This might help explain why I am awake at 4 am...😕

Please excuse my typos. My flare ups make me jerk and shake sometimes. Its hard o type. I meant to say that I am on zero medication at this time for it due to the flare-up reaction
Thanks in advance.

LIT LOVE 03-06-2015 04:48 AM

If you state the med that would help with feedback.

Acoya143 03-06-2015 05:29 AM

I'm sorry I didn't know that could state the names here. I was on 10 mcg of Butrans which as diet 20 mcg. The same day the RSD move from my feet and left hand up to my back and to my mouth. It was incredibly painful. It felt and looked like my whole body had chapped too. After the med was stopped it took several weeks for evèrything to calm a bit.

Acoya143 03-06-2015 07:33 AM

Sorry again yikes typos! That was the Butrans was 10 and then the Doctor doubled it to 20 mcg

Russell 03-06-2015 07:54 AM

Hi Acoya,
Did you sop taking meds on your own? Just asking...

St George 2013 03-06-2015 08:32 AM

Welcome Acoya
 
I am so sorry you are having so much pain. I have small fiber neuropathy but your medicine caught my attention.

I am also on the BuTrans patch. I started at 5 mcg/hr, and each month since have gone up (to 7.5 then 10 and will start the 15 this Saturday).

I've only had site reaction from the patch that lasts a week after taking it off. Red and angry skin but it slowly fades away.

I have not have much contact with anyone that uses these patches but I hope someone comes along that can help you.

Please keep us posted and I pray your pain lessens quickly.

Debi from Georgia

LIT LOVE 03-06-2015 01:16 PM

The whole point of Low Dose Naltrexone is to achieve pain relief without side effects. I don't think increasing the dosage is supposed cause greater pain relief. What you're taking seems to be a variation of the same type of med.

Your original dosage by patch is probably stronger than Low Dose Naltrexone.

This link has info about both Low Dose Naltrexone and the idea that opiates can increase pain. (What you were on is a synthetic opiate.)
http://painsandiego.com/category/low...altrexone-ldn/

Acoya143 03-06-2015 05:49 PM

Quote:

Originally Posted by Russell (Post 1127793)
Hi Acoya,
Did you sop taking meds on your own? Just asking...

Hi Russell, thank you for the reply. I believe it was mutual. This was last month and here I am in another flare up. Has you or anyone else taken Mobic for the inflammation? I start that tonight.

Acoya143 03-06-2015 05:53 PM

Quote:

Originally Posted by St George 2013 (Post 1127799)
I am so sorry you are having so much pain. I have small fiber neuropathy but your medicine caught my attention.

I am also on the BuTrans patch. I started at 5 mcg/hr, and each month since have gone up (to 7.5 then 10 and will start the 15 this Saturday).

I've only had site reaction from the patch that lasts a week after taking it off. Red and angry skin but it slowly fades away.

I have not have much contact with anyone that uses these patches but I hope someone comes along that can help you.

Please keep us posted and I pray your pain lessens quickly.

Debi from Georgia

Thank you Debi! This is all kind of new to me. I was rearended by a truck and had emergency spinal cord surgery for a cmpressed spine. Its been down hill from there. That was 1.5 years ago.


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