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-   -   MG and LYME (https://www.neurotalk.org/myasthenia-gravis/217374-mg-lyme.html)

michaelunty 03-13-2015 08:31 PM

MG and LYME
 
Hi, Has anyone heard of a person being diagnosed with MG when ultimately, after some years it turned out to be LYME?.

AnnieB3 03-15-2015 06:59 PM

Hi, michaelunty. No, I haven't heard of that, but it doesn't mean that it doesn't happen.

I have a friend who has Lyme and then got MG years later.

Have you been tested for Lyme? Do you have MG antibodies?

Let us know if you need any more help!

Annie

kathyrooker 03-16-2015 10:24 AM

I also know someone that was treated for Lyme for years despite having negative test results. She was diagnosed with MG after a doctor noticed her drooping eyelids and sent her to a neurologist where she tested positive for MG. I know another person who insists she has Lyme despite negative test results and has all the symptoms of MG but refuses to be tested for it. The medications she takes for Lyme are not effective and she is suffering terribly.

Stellatum 03-18-2015 08:41 AM

Quote:

Originally Posted by michaelunty (Post 1129356)
Hi, Has anyone heard of a person being diagnosed with MG when ultimately, after some years it turned out to be LYME?.

I have read that infections--especially long-lasting, untreated infections--can trigger autoimmune diseases. So if someone has Lyme for a long time, it can lead to MG. Then the person has both Lyme and MG.

So if a person has a diagnosis of MG, and then is discovered to have Lyme disease, I would be careful not to assume it was Lyme and only Lyme all along. How was the diagnosis of MG made? Lyme doesn't cause the antibodies that a blood test for MG looks for. Lyme doesn't causes a positive SFEMG. I've never heard of the symptoms of Lyme responding to Mestinon or Tensilon. Also, I know that Lyme symptoms can vary greatly (and so can MG symptoms), but there are MG symptoms that don't appear on the Lyme list, and Lyme symptoms that don't appear on the MG list.

Abby

michaelunty 04-12-2015 08:53 PM

mg
 
Quote:

Originally Posted by AnnieB3 (Post 1129623)
Hi, michaelunty. No, I haven't heard of that, but it doesn't mean that it doesn't happen.

I have a friend who has Lyme and then got MG years later.

Have you been tested for Lyme? Do you have MG antibodies?

Let us know if you need any more help!

Annie

Yes, I do have MG.

michaelunty 04-22-2015 06:24 PM

Quote:

Originally Posted by Stellatum (Post 1130085)
I have read that infections--especially long-lasting, untreated infections--can trigger autoimmune diseases. So if someone has Lyme for a long time, it can lead to MG. Then the person has both Lyme and MG.

So if a person has a diagnosis of MG, and then is discovered to have Lyme disease, I would be careful not to assume it was Lyme and only Lyme all along. How was the diagnosis of MG made? Lyme doesn't cause the antibodies that a blood test for MG looks for. Lyme doesn't causes a positive SFEMG. I've never heard of the symptoms of Lyme responding to Mestinon or Tensilon. Also, I know that Lyme symptoms can vary greatly (and so can MG symptoms), but there are MG symptoms that don't appear on the Lyme list, and Lyme symptoms that don't appear on the MG list.

Abby

I am responding to Cellcept and Mestinon. Blood tests have proven positive for MG. No Lyme.Thank you one and all for your responses.(Also took 80 mg daily of Prednisone for 3 months, have been battling to come off same for about 7 months now). Thing is I could not of reached my present day type of life without the drugs.


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