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michaelunty 03-14-2015 11:51 AM

michaelunty
 
Thymus removal, Does removal of Thymus remove all MG symtoms and cessations of medication?. (I understand that coming off of medications takes time,been coming off Prednisone for 6 months lol).
What other negatives/side affects manifest after removal?

Juanitad 03-14-2015 03:56 PM

Removal of the thymus does not guarantee remission of mg. I believe a lot depends on your age and the extent of your mg. I had mine at age 55 (5 years after diagnosis) and while it did not put my mg into remission, it did help me control the symptoms better. I was able to wean completely off my prednisone and cut back on the mestinon. However, while I was in the hospital, my nurse told me she had her thymectomy at age 25 and had been in full remission for about 20 years. In fact, she shocked me when she told me she had mg and had a thymectomy because I didn't see any signs of mg. I think, much like the rest of this disease, it is different for every person.

Good luck on your decision.

AnnieB3 03-15-2015 06:58 PM

Juanitad is right. There's no way to predict how you might improve or not after a thymectomy.

Some studies say that if it's done early on in the disease process that you have a better chance at either drug-induced remission or drug-free remission.

Probably the only negatives that occur after a thymectomy are a risk of a MG crisis from surgery, pain from incisions/trauma, and a somewhat long recovery time where you need to pamper yourself (which is really a good thing).

And, of course, the scar. ;)

I hope you will do very well and recover quickly.

Annie


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