Infrared Helmet Claims to Reverse Symptoms of Parkinson's
This was discussed on this forum in 2008, but hasn't seen much activity as of late:
http://neurotalk.psychcentral.com/sh...nfrared&page=1 I am contemplating enrolling my father in clinical trials of an LED helmet that uses several Near Infrared (nIR) Bulbs that focus infrared light into the brain. A rather convincing video posted on Youtube led me to Marvin Berman, the director of the Quiet Mind Foundation. You can see two compelling videos by searching the web for: 1072 treatment Parkinson's then search for: CBS Light Therapy Helmet Helps Treat Health Problems While the videos are pretty amazing, I am cautiously optimistic, and would specifically like to know how patients will do in the long term with such a treatment. I spoke with Dr. Berman on the phone, at which point he reviewed the preliminary research with me, and discussed the preliminary results of more than 20 people in Africa who he claims had an 80% success rate using this technology. I believe he is conducting this research in coordination with Durham university. The research on nIR shows that it stimulates neuroprotection and ATP production (ATP is what cells use to create energy within the cell), which might explain the surprising results in the video above. In order to enter the study, the cost is $15,000, which is due to the extremely high cost of 1072 nm LEDs. As this represents a huge portion of my dad's retirement savings, I'm not jumping into this without due diligence. I would like to know if anyone has any experience using nIR, specifically at wavelengths of 1072 nanometers, which has been shown during neurosurgical studies to penetrate through the skin and skull, reaching much deeper into the cortical tissue. I know several people discussed building similar LED helmets in 2008, so hopefully someone can share anecdotal evidence? I will share research on nIR later, but don't have time to post it now. Thanks in advance! Jonathan |
One quick addendum: a major focus of this research is also neurofeedback training, so Z-Score EEG training is added to the nIR therapy. Z-Score EEG biofeedback trains the client's EEG toward "normative" values, which are values you expect to see in a representative sample of people who don't have any identified pathology and who are cognitively high functioning individuals.
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Hi Jonathan, Altho I''ve not seen reference specifically to the helmet by Randy Eady, he has extensive background in developing and applying infrared light technology and is famaliar with frequency specific applications . Also Dr. Sandyk who practices in NY. (both easily found on the net) Thanks and please keep us updated! All the best ....sharilyn |
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WOW!! very cool
LUCKY you!!well all I can say is get ready for more synchronicities....
I live in the opposite direction (Oregon) but am traveling to see Randy in April. |
you are going to wipe out your father's savings on what could possibly be a scam?
i looked at Marvin Berman's website, i wouldn't touch this treatment with a 10 foot pole. if you still want to do this, go down the list of associates on his website and see how many you can actually contact. |
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Not sure why you would start off with an attack, but please refer to the top where I mentioned due diligence. I have not committed anything to this project, but am in the process of collecting data. If you want to add to the conversation, please make it pleasant and refute the claims. But if you are interested in looking at some of the research, look up infrared on Pubmed. Other than the extraordinary claims, what makes you think it is a scam? I will respect any logical, tangible contributions you have to make to this discussion, and hope you do the same for me :) |
I have done near infrared light therapy for restless legs and also localized healing. It has helped me. Here's a crazy link that covers all kinds of things related to it, including a helmet.
http://heelspurs.com/led.html NASA actually came up with healing and near infrared. There is a lot to this concept but I don't know about paying 15K for inclusion in a study. I personally use infrared lights designed for night security systems. They are around 750-850. |
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http://neurotalk.psychcentral.com/thread83783.html |
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i think it's a scam, can't prove it. just figured i would comment since you mentioned a sig. amount of money. i'm done here. |
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I don't think that this therapy will be a cure-all, and I doubt it is regenerative in the sense that the dopaminergic cells that have been lost will most likely not come back. However, based on the preliminary research I have collected, Infrared therapy looks to be very promising. A scam is something that is completely based in fantasy. I understand why you would believe the claims are too good to be true, but please take a moment to review the following literature: The impact of near-infrared light on dopaminergic cell survival in a transgenic mouse model of parkinsonism http://www.sciencedirect.com/science...06899313011840 Non-invasive infra-red therapy (1072 nm) reduces β-amyloid protein levels in the brain of an Alzheimer's disease mouse model, TASTPM. http://stevekbaker.com/wp-content/up...ouse-model.pdf Low-level light therapy of the eye and brain http://www.collegeofsyntonicoptometr...-and-brain.pdf Enhancement of cutaneous immune response to bacterial infection after low-level light therapy with 1072 nm infrared light: a preliminary study. http://www.ncbi.nlm.nih.gov/pubmed/21955546 Evaluation of the efficacy of low-level light therapy using 1072 nm infrared light for the treatment of herpes simplex labialis. http://www.ncbi.nlm.nih.gov/pubmed/23731454 Emotional responses and memory performance of middle-aged CD1 mice in a 3D maze: Effects of low infrared light http://www.sciencedirect.com/science...74742707001153 Probing the differential effects of infrared light sources IR1072 and IR880 on human lymphocytes: Evidence of selective cytoprotection by IR1072 http://www.sciencedirect.com/science...11134405001077 Photobiomodulation with IR1072nm in the murine CNS: in vitro and in vivo studies http://ethos.bl.uk/OrderDetails.do?u...l.ethos.519104 "Long-term chronic in vivo IR1072 treatments in CD-1 mice, consisting of biweekly 6 minutes sessions spanning a 5 month period, increased expression of selective HSPs, notably HSP27 in cortical and hippocampal regions. Following chronic IR1072 treatment, a profound reduction of AMPA receptor binding sites in CD-1 mice, and reduced total A?1-42 expression and small amyloid plaque counts (in cortex and dentate gyrus) in TASTPM mice, was observed. Overall, this thesis reveals new mechanisms of photobiomodulation with IR1072 which involves restoring cellular homeostasis for optimal functional operation of a neuron." Exploring the Effects of Non-Thermal Infrared Irradiation on an AlzheimerG http://www.physoc.org/pi3k-like-prot...20Soc%2021PC34 Using Visible and Near-IR Light to Facilitate Photobiomodulation: A Review of Current Research http://euroessays.org/wp-content/upl...4/EJAE-170.pdf A randomised double-blind study comparing the effect of 1072-nm light against placebo for the treatment of herpes labialis http://onlinelibrary.wiley.com/doi/1...B0E96B3.f02t03 Near infrared light mitigates cerebellar pathology in transgenic mouse models of dementia http://www.sciencedirect.com/science...04394015001512 A review of the lit on intranasal LED from the owner of a company that sells intranasal devices, with citations: http://beta.asoundstrategy.com/sitem...%20therapy.pdf Not peer-reviewed, but interesting: http://blog.mediclights.com/wp-conte...s-Abstract.pdf As well as the following interesting hypothesis: Did human hairlessness allow natural photobiomodulation 2 million years ago and enable photobiomodulation therapy today? This can explain the rapid expansion of our genus's brain. http://www.ncbi.nlm.nih.gov/pubmed/25703782 While I am aware that $15,000 is a lot of money, the LEDs that operate at 1072nm are very expensive, each running at around $400. For 20 LEDs, that would be $8000--just for the LED lights with no helmet. Not to mention the cost for time spent doing evaluations (pre & post QEEGs, a brainscan using EEG, run anywhere from $500-900), followups, troubleshooting, biofeedback mentoring, crunching data, administrative overhead, publishing, lecturing, etc. I really doubt Berman has anything to gain financially from this, since it would be more profitable to focus on his neurofeedback practice. I am fully aware of how big a research commitment this is because I work in the field of neurofeedback, and I have seen Dr. Berman contribute to the biofeedback forums for several years now. The only person who would want to take on such a project is someone who is excited about publishing the results with their name attached to it. Dr. Berman has much more at stake than money; he is staking his professional career on this. Hope this helped to shed light on the potential of this therapy, and I welcome any question/criticisms. Sincerely, Jonathan |
Curem, I am impressed you would take this much effort to help your father. He must be very proud of you. Keep up the good work.
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just curious, how old is your dad?
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Hi curem
Before you decide whether or not to buy one of Dr Berman's near-IR products you might like to check if he has reported evidence for its efficacy for PD treatment as one or more case-notes in the peer-reviewed medical literature. In this context a case-note would look like this: (1) A patient presented with PD [clinical details here]. (2) I treated the patient with [details of the near-IR product usage here]. (3) This treatment was successful [clinical details here]. Case-notes are a standard way in which evidence-based health professionals share potentially valuable new findings with their colleagues. I can't find any case-notes from Dr Berman but I could have missed them. |
soccer: My dad is 73, but was diagnosed about 4-5 years ago. He is still very active and plays tennis, but has issues with nausea that affect him a bit.
kiwi: Thank you for the heads up. I will be asking him for preliminary results, and will ask if I can speak with the current participants in America, of which I believe there are five so far. There are over twenty participants in Africa, so I want to know more about that trial. I figured there would be more data on this forum from people who have used the helmet, but I guess that's not the case. Does anyone have experience with this, or know someone who does? Quote:
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another helmet device pulsing frequencies
this helmet is used for diagnostic as well as therapeutic purposes....a notable and interesting feature of certain medicine/therapeutic applications. https://earthpulse.net/Anninos.htm
http://utopia.duth.gr/~gxaral/systems_122.jpg https://www.google.com/search?newwin...2F%3B210%3B283 |
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Thank you for the info. I have heard various success of practitioners using magnetic therapy with various hardware, such as Brainmaster EEG biofeedback systems: http://www.brainm.com/kb/entry/507/ I will look into it more on the biofeedback discussion forums. soccer: This is my father's account. I don't have Parkinson's. |
Before starting on this route I'd want to know the significance of a 1072nm led? Why this wavelength and not 1000nm or 1100nm, etc.? Why leds and not a laser or a heater?
To get a feel for the problem: - about 10% of the energy of the sun's radiation is contained in wavelengths above 1072nm; - the spectrum of the radiation from a halogen lamp has a maximum close to 1072nm; - a TV remote uses a 940nm LED - on ebay you can get 10 for a pound; - a 1310nm led, £33 ebay. - a 1070nm led, £15, Thorlabs - I cannot find any work linking 1072nm to alpha-synuclein. John |
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Edit: Is this the LED you're talking about? I don't have the technical background to know whether or not this would be the same type of LED used in the study: https://www.thorlabs.com/thorproduct...umber=LED1070E |
There are some past postings on helmets for PD and some were thinking about making their own.
You can try the search tool here to locate those old posts.. http://neurotalk.psychcentral.com/search.php |
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1072nm light provides the greatest penetration with the least amount of heat. Because bone is porous, it is translucent and allows infrared light to penetrate into the out layers of the cortex. Most of the IR light is absorped by the skin, with 6-8% of the light being absorbed by the cortex (3-4cm). In addition, because the posterior IR light is shined at an angle, it is postulated that it will pass through the occipital bone/foramen magnum of the skull to stimulate the cerebellum: http://www.mayfieldchiaricenter.com/...B_chiari-I.jpg Many articles have been written about the benefits of other wavelengths, and I included a link to an article that shows 680nm has significant therapeutic effects on mice with Parkinson's. I imagine that 1072nm is used in humans due to the thickness of the skull, and thus offers greater depth of penetration to reach the underlying cortex. Here is the research I've found on the topic of IR and alpha-synuclein so far: Non-invasive infra-red therapy (1072 nm) reduces b-amyloid protein levels in the brain of an Alzheimer’s disease mouse model, TASTPM http://www.ncbi.nlm.nih.gov/pubmed/23603448 Here is a PDF of that research: http://stevekbaker.com/wp-content/up...ouse-model.pdf ------------- Therapeutic effect of near infrared (NIR) light on Parkinson's disease models http://www.ncbi.nlm.nih.gov/pubmed/22201916 Link to full paper: https://www.bioscience.org/2012/v4e/af/421/2.htm "The mice were sacrificed after six days, and the brains were processed for tyrosine hydroxylase immunochemistry. Dopaminergic cells from two regions were studied, the substantia nigra pars compacta (SNc) and the zona incerta-hypothalamus (ZI-Hyp). The SNc is the region showing the main loss of dopaminergic cells seen in Parkinson's disease. The major finding was the presence of significantly more dopaminergic cells in the MPTP NIR light-treated animals as compared to MPTP alone animals. In contrast, the ZI-Hyp samples showed no significant difference between these groups. In addition, cell survival was MPTP dose dependent. After the higher MPTP dose, the magnitude of cell loss was similar in the two regions, while cell loss was greater in the SNc than the ZI-Hyp after the lower dose. This neuroprotection of dopaminergic cells by NIR light therapy, more evident in the PD relevant SNc, has clear clinical applications in the treatment of Parkinson's disease. 7.2. Transgenic mice The study of alpha-synuclein point mutations has been expanded from the neuroblastoma cell model to a transgenic mouse model by investigating the protective effects of NIR light therapy in transgenic mice expressing the A53T human alpha-synuclein point mutation (31). A53T transgenic mice received NIR light treatment at 670 nm and 7.5 J/cm2 three times per week beginning at eight weeks of age. At phenotype onset mice received NIR light once per day until they exhibited signs of extreme distress. Onset and severity of disease phenotype were analyzed. NIR light therapy delayed disease progression and attenuated the severity of the disease phenotype. The median age of disease phenotype onset was 455 days for non-NIR light treated mice and 535 days for NIR light-treated mice. At 500 days, significantly fewer NIR light treated mice developed the disease phenotype. Also, of those mice that developed the disease phenotype, NIR light treated mice demonstrated delayed progression of disease measured from time of phenotype onset to sacrifice. Utilizing a grading scale developed to score disease phenotype, the median scores of NIR light treated mice was 1, whereas non-NIR light treated A53T mice had a median score of 2. These findings support the neuroprotective actions of NIR light therapy in an established animal model of Parkinson's disease. 8. PERSPECTIVE The PD models detailed in this review allow us a way to test a promising new therapy for neurodegenerative diseases using near infrared radiation. As the cellular mechanisms and processes involved when using NIR light therapy are unraveled, against a background of established PD models, we can work out the details of the necessary light exposure and the changes we expect to see. Work has been pushed forward to include rodent models and actual behavioral measures, which brings us closer to our goal of an effective therapy relevant to the needs of actual human Parkinson's sufferers. As current Parkinson's treatments revolve around counteracting the effect of neuronal loss, we are still in the stage of trying to make the surviving neurons "work harder". A more elegant, and possibly more effective, goal would be to prevent the loss of dopaminergic neurons in the first place. Although this would not reverse any degeneration that may have occurred already, we may be able, for the first time, to actually arrest, or at least slow down, further neuronal degeneration and perhaps halt disease progress. As Parkinson's patients do not normally present until the disease stage is well advanced, this is perhaps the best course we can offer. ------------ Low-Intensity Light Therapy (1068 nm) Protects CAD Neuroblastoma Cells from β-Amyloid-Mediated Cell Death http://omicsonline.com/open-access/l...s1-1000003.pdf |
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Thanks for the info. I had already conducted a search on the topic and listed some of the results on this thread, but there has been no followups that I'm aware of. But I took your advice and I went back and looked at a thread on the Parksinson's forum: http://neurotalk.psychcentral.com/sh...+helmet&page=4 I would build my own helmet if I had the technical expertise. I was under the impression, based on my original interpretation of the post above, that the LEDs were $400 a piece, but I think I misread that--I think they meant $400 for all the parts needed for a completed helmet. I'm seeing the 1070 LEDs for $20, so that certainly changes the cost factor. But I'm not an electronics expert, so I would not feel at all comfortable building this myself, as the wrong configuration can be harmful. That said, I will have to find out more information about the cost of this study before I commit. Is there anyone I can hire to build this for us? |
I am reading conflicting information about the cost of LED bulbs, but it looks like ONE LED bulb configuration costs $400. Is this right?
http://neurotalk.psychcentral.com/sh...+helmet&page=4 |
I don't know about the costs , but I'm thinking LEDs should be cheaper than low level laser diodes. Unless it has something to do with the # nm part.
I don't know if anyone here ever finalized a helmet design, or actually tried it. Since you are looking outside the box for treatments, what about things like grounding/earthing, detoxing, naturopathy, acupuncture? What are your dad's most bothersome symptoms? I can recommend low level laser therapy (also called cold laser, soft laser) for muscle & joint pain, as I had successful and quick results @ chiro appts. Treatments were for wrist, foot, shoulder, elbow, low back & neck pain. Many times it only took a one time tx of 20-30 seconds to stop the pain in this spot. |
imho
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http://www.mdsabstracts.com/abstract...=798&id=107103 And you might also find the following article informative: The potential of light therapy in Parkinson’s disease https://www.dovepress.com/getfile.php?fileID=19055 "Functional restoration Not only does light therapy protect against the degeneration of dopaminergic neurons, but it also appears to restore func- tional activity to those neurons that are saved. For example, light therapy has been shown to correct abnormal neuronal activity generated by the parkinsonian condition.85 Using Fos immunohistochemistry (a well-established measure of neuronal activity), the overactivity of neuronal firing in the subthalamic nucleus and zona incerta (two key basal ganglia nuclei) characteristic of parkinsonian cases has been reported to be reduced substantially after light therapy. This reduction does not quite reach control levels, indicating that the restora- tion is partial, and has been attributed to the surviving SNc dopaminergic neurons being functionally active, continu- ing to produce and release dopamine at their terminals in the striatum.85 These early functional results could be built upon by further electrophysiological and pharmacological explorations." I understand your anger at all of the therapies that promise bogus cures, but the evidence I have collected to date on this topic seems very promising. It might not work as well as the research indicates, and I don't think it will cure anyone of Parkinson's, but appears to slow progression, mitigate alpha synuclein deposition, reduce neuroinflammation, and increase ATP output from the surviving dopaminergic cells. If any of us wait around for traditional MDs to save us with some sort of miracle, we will also have to wait years for clinical trials, as well as FDA approval. Not to mention that I have seen miracles in my profession (neurofeedback) on a daily basis with OCD, depression, ADD, Anxiety, etc etc. How many people know that depression and anxiety can be treated without medication using EEG biofeedback? How many people in the mainstream culture have ever even heard of neurofeedback? Since Parkinson's is a progressive illness, I would rather experiment with therapies that don't work than do nothing. I was afraid to do anything with my dad until I realized this point. And while I appreciate your valid level of frustration of staking hope in purported therapies that have failed you over and over again, I am cautiously optimistic about LED technology. But given the remarkable amount of research that points to a potentially amazing technology, most of which has been studied by researchers with 0 financial interest in propagating snake oil, I am left with the hope that at the very least, it appears to possibly slow progression of Parkinson's, and at the best, offer a slight reduction of symptoms. |
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i really don't want to discuss this to death, best of luck. |
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Members are free to ask, post about or discuss possible alternative treatments, some may work and some may not, and some may be scams.
It may not be what you would explore for yourself but sometimes this is how discoveries are made. ************************************************** ***************** *If you are not interested in the topic just ignore the discussion, please.* |
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The laser therapy is in fact one area I have on my to-do list to investigate, so I appreciate your anecdotal evidence. Neurofeedback helps with his anxiety and depression, and his tremors stop while we are doing the training, but return when the session is over. But the same is true for when he meditates. (It helps anxiety and tremors temporarily.) I have a neighbor who is a researcher in the neuroscience department of the local university, so I will discuss the helmet idea with him next time I see him. Perhaps they might sponsor a study with grant money, or design a helmet themselves. Since the treatment is only six minutes per day, I don't see why a helmet couldn't be designed with empty placeholders, and the user could switch the position of one or two LED lights around the head to offset the cost. If the LED with lens, casing, and fan cost a total of $400, then I could see creating a helmet that costs below $1,000. I will also approach the bioengineering department to see if this is a project they might be interested in undertaking with their students. With regard to naturopathy, we are lucky to have a mainstream MD who is also a functional medicine specialist, and who embraces some of the theories that first began with naturopaths. We are currently investigating SIBO as the cause of my father's nausea. According to one study, 55% of people with Parkinson's also have SIBO, perhaps due to poor gastric motility. If he does have SIBO, low-dose naltrexone has successfully been used in treatment-resistant cases, as promotes motility and decreases inflammation of the gut: http://www.ldnscience.org/interviews...in-ibd-ibs-rls As I am sure has been discussed many times on this forum, LDN is also a medicine that has been reported to help some people with Parkinson's, so it would hopefully help with SIBO as well. He tried acupuncture for the nausea and it worked well the first couple of times, but then didn't have much effect. I don't know much about grounding or what type of detoxing therapy you have experience with, but I think chelation therapy is sometimes used in cases of heavy metal toxicity. I don't know what efficacy it has, since I haven't looked at the research. I will take more of a look at what you're suggesting, and I really appreciate your response :) |
I would not pay $15000 for this procedure. The uncertainty of whether near infrared light technology is efficacious for PD is too high, in my opinion, to justify spending that amount of money. And even if this technology proves to be useful, it may be no better than spending time in the sun. Exercising, walking and playing tennis in the sun, is probably a reasonable alternative.
The fact that this technique has been around since at least 2008 and not become mainstream in PD suggests to me that it does not offer much directly. But, there's more to life than direct causality. LED technology does offer something as a "therebo" (possible THERapy or placEBO). Given the position of the substantia nigra, PD is always going to be a hard target for this technology to address, but it may offer something in the way of relieving other conditions experienced by PwP. That said, I believe that the science behind the technology is well worth studying. I have now found on ebay UK 100 1050nm LEDs for £12. LEDs emit a spectrum of radiation, albeit narrower than the classic black body, but still wide enough to include 1072nm. (Anyhow, my take on the theory is that 1072nm exactly is not important. It is used because it offers good penetration in body tissue. This allows less powerful LEDs to be used, thus reducing unwanted heating elsewhere.) A basic helmet could be made for about £20. Anyone experimenting with this technology is urged to act prudently. There is, it seems to me, the risk of dangerous levels of heating of the eyes and the brain developing. Finally, I'm very impressed by the quality of the original thread back in 2008. That's before my time on the forum, so I cannot claim any credit. Let us try to reach that standard now. John |
What happened?
So where did this end up?
Lots of recent information and studies relating to infrared lights for Parkinson’s. Red lights on the brain – Red and near infrared lights – can they help degenerative neurological diseases? |
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