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-   -   Some hope for the idiopathic ones (https://www.neurotalk.org/peripheral-neuropathy/217602-hope-idiopathic-ones.html)

Healthgirl 03-18-2015 07:50 PM

Some hope for the idiopathic ones
 
Today I went to a spine surgeon for a second opinion on my cervical spine. I brought my MRI and wanted to see if he thought my disc herniations could have cause the neuropathy all over my body. He said no and that they are normal degeneration for my age. I asked him if a repetitive overuse trama could have caused this. He said no, it had to have been there in the first place and maybe the repetitive strain just flared it.

Anyway so much for that theory. I guess theorizing doesnt help anyway. I just really like reasons and can't stand not being able to figure this out. I'm coming to terms, but not giving up.

I asked him if he's ever seen anyone with small fiber neuropathy and dyautonomia get better and he said Yes!!!
He is the second dr who said he has seen it reverse. I hear so many people say there doctors only say that it progresses or stays the same. I am hopeful. So hopeful!!!:D

ger715 03-18-2015 09:34 PM

Quote:

Originally Posted by Healthgirl (Post 1130226)
Today I went to a spine surgeon for a second opinion on my cervical spine. I brought my MRI and wanted to see if he thought my disc herniations could have cause the neuropathy all over my body. He said no and that they are normal degeneration for my age. I asked him if a repetitive overuse trama could have caused this. He said no, it had to have been there in the first place and maybe the repetitive strain just flared it.

Anyway so much for that theory. I guess theorizing doesnt help anyway. I just really like reasons and can't stand not being able to figure this out. I'm coming to terms, but not giving up.

I asked him if he's ever seen anyone with small fiber neuropathy and dyautonomia get better and he said Yes!!!
He is the second dr who said he has seen it reverse. I hear so many people say there doctors only say that it progresses or stays the same. I am hopeful. So hopeful!!!:D




Did this doctor have any suggestions on reversing neuropathy?


Gerry

Healthgirl 03-19-2015 06:32 AM

Quote:

Originally Posted by ger715 (Post 1130252)
Did this doctor have any suggestions on reversing neuropathy?


Gerry

No none at all. What he and the other dr. have seen is spontaneous remission I guess. Kind of like a very very long virus or autoimmune situation that rights itself.

beatle 03-20-2015 11:26 PM

I've heard the same, about the possibility of spontaneous remission after the virus (or whatever it is) hits all of its targets. I'm 2.5 years in so far so, uh yeah, any time now!


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