NeuroTalk Support Groups - need help! anyone have a crps dr.for back/face

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waterfall

03-20-2015 11:55 AM

need help! anyone have a crps dr.for back/face

Hi all!
I'm new here. Have been suffering from what I'm sure is crps. I need a doctor who has seen crps in the BACK and Face. It's been almost 20 months without a dianosis. I'm in California. I will go to any state where a crps specialists has seen this. The doctors here won't diagnose because they have never seen it like this.
Thank you in advance! I would be so appreciatve!
Regards, Waterfall

Kitt	03-20-2015 12:57 PM

Welcome waterfall. :Wave-Hello:

Lara	03-20-2015 03:08 PM

Hello Waterfall,

Welcome to NeuroTalk.

Perhaps you could repost over on the

Reflex Sympathetic Dystrophy (RSD and CRPS)

The members there would be able to make suggestions I'm sure.

At the top of the forum are the "Sticky" threads too and they contain useful information, websites and other resources. They're worth checking.

I'm sorry you've gone so long without diagnosis. I hope you are able to find a knowledgeable doctor and some treatment for your painful condition.

take care.

Littlepaw

03-20-2015 05:25 PM

Welcome Waterfall,

So sorry you had to come find us! There is a great bunch here though and you will find solace and support. Have you contacted Stanford? They have a cutting edge pain program and do CRPS research. Ian McCarrol and Sean Mackey both highly regarded in the field. As a tertiary referral center I'm sure they've seen it all. We have at least one forum member for the CRPS site who has been there. They are getting ketamine there sometime soon.

Sending Healing Love,
Littlepaw :hug:

Darlene

03-23-2015 12:20 AM

Great to meet you!!

http://dl8.glitter-graphics.net/pub/...csygxkcbfb.gif

Waterfall,

:Wave-Hello: Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

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