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-   -   Best way to find a solution? My story.. (https://www.neurotalk.org/peripheral-neuropathy/217763-solution-story.html)

Tunaboy 03-22-2015 11:01 AM
Best way to find a solution? My story..
 
Hey everyone!

After lurking around here for the past week, I've come to the conclusion that you need to be very proactive in finding solutions instead of just relying on the doctor's word.

I'm 35 yrs old and it all began after wisdom teeth removal 3 months ago. I was under local anesthesia and also given intravenous steroids to reduce inflammation. Post-op I took motrin and a 10 day course of Amoxicillin. About a week later, I noticed the top of my right foot was partially numb, felt like it was asleep. It never went away and the feeling slowly progressed up my calves. I just thought it would go away until I started getting tingles and buzzing in my left foot. I went to my primary and did some bloodwork. Everything came back "normal" and my B12 levels were around 1500. Then went to a neurologist. I did an EMG and was told I probably damaged my perenial nerve and that I have some foot drop, but she didn't explain why my left leg was having the same symptoms. She just prescribed me 60mg dose of prednisone to take for 3 days, then gradually taper off until day 12. After doing lots of research and finding out that this drug was no joke and the dosage was rather high, I skipped out on taking it.

Fast forward a month later, the tingles and buzzing sensations seem to be spreading up my legs, my hands, arms, part of my back/shoulder. My legs feel weaker and my knees have a locked sensation. The pain isn't bad, it's mainly the "asleep" feeling and some slight burning occasionally. It's more of an annoying/uncomfortable feeling. I went to another neuro last friday and i'm having another EMG done in a couple days. Yesterday I felt noticeably more fatigued, loss of appetite, and general feeling of being sick.

After doing lots of research, I definitely think I have some form of PN. I'm not sure if its SFN, LFN, MMN, CIDP, etc. What tests should I request be done? How can I make sure they are being as thorough as possible? Like everyone on here, I want to find a solution as quickly as possible to hopefully prevent it from getting worse. It's very discouraging that it's taking people months and years to be diagnosed properly. Should I be seeing multiple neurologists at once? I am thinking of finding another one just to get a second opinion. Any advice would be greatly appreciated!

anon050715 03-22-2015 12:41 PM
Quote:
Originally Posted by Tunaboy (Post 1130974)
Hey everyone!



After lurking around here for the past week, I've come to the conclusion that you need to be very proactive in finding solutions instead of just relying on the doctor's word.



I'm 35 yrs old and it all began after wisdom teeth removal 3 months ago. I was under local anesthesia and also given intravenous steroids to reduce inflammation. Post-op I took motrin and a 10 day course of Amoxicillin. About a week later, I noticed the top of my right foot was partially numb, felt like it was asleep. It never went away and the feeling slowly progressed up my calves. I just thought it would go away until I started getting tingles and buzzing in my left foot. I went to my primary and did some bloodwork. Everything came back "normal" and my B12 levels were around 1500. Then went to a neurologist. I did an EMG and was told I probably damaged my perenial nerve and that I have some foot drop, but she didn't explain why my left leg was having the same symptoms. She just prescribed me 60mg dose of prednisone to take for 3 days, then gradually taper off until day 12. After doing lots of research and finding out that this drug was no joke and the dosage was rather high, I skipped out on taking it.



Fast forward a month later, the tingles and buzzing sensations seem to be spreading up my legs, my hands, arms, part of my back/shoulder. My legs feel weaker and my knees have a locked sensation. The pain isn't bad, it's mainly the "asleep" feeling and some slight burning occasionally. It's more of an annoying/uncomfortable feeling. I went to another neuro last friday and i'm having another EMG done in a couple days. Yesterday I felt noticeably more fatigued, loss of appetite, and general feeling of being sick.



After doing lots of research, I definitely think I have some form of PN. I'm not sure if its SFN, LFN, MMN, CIDP, etc. What tests should I request be done? How can I make sure they are being as thorough as possible? Like everyone on here, I want to find a solution as quickly as possible to hopefully prevent it from getting worse. It's very discouraging that it's taking people months and years to be diagnosed properly. Should I be seeing multiple neurologists at once? I am thinking of finding another one just to get a second opinion. Any advice would be greatly appreciated!

Sounds like me. I'll be 35 in June and this neuropathy started out of the blue. Welcome bud.

Kitt 03-22-2015 12:52 PM
Welcome Tunaboy. :Tip-Hat:

Tunaboy 03-22-2015 01:28 PM
Quote:
Originally Posted by UTGrad (Post 1130988)
Sounds like me. I'll be 35 in June and this neuropathy started out of the blue. Welcome bud.
I read your thread as well. Scary how life can change in an instant. Hang in there!

Quote:
Originally Posted by Kitt (Post 1130992)
Welcome Tunaboy. :Tip-Hat:
Thank you :)

anon050715 03-22-2015 01:45 PM
Quote:
Originally Posted by Tunaboy (Post 1131001)
I read your thread as well. Scary how life can change in an instant. Hang in there!







Thank you :)

Same to you!!

So how long has it been for you since the start of the symptoms to today? I'm at day 36. I've actually started a count up app on my iPhone lol.

To be honest I was getting weird zaps in the affected foot for a while now but it was so random and transient I brushed it off.

Tunaboy 03-22-2015 01:55 PM
Quote:
Originally Posted by UTGrad (Post 1131005)
Same to you!!

So how long has it been for you since the start of the symptoms to today? I'm at day 36. I've actually started a count up app on my iPhone lol.

To be honest I was getting weird zaps in the affected foot for a while now but it was so random and transient I brushed it off.
It's been 11 weeks since I first noticed the numbness in my right foot. I brushed it off as well thinking I could live with a little numbness and that it would go away. It wasn't until I started feeling it in my left foot I became concerned. This past week is when I started noticing it more in my arms, back, and shoulder. Also, my legs feel weaker, kinda like jello.

mrsD 03-22-2015 03:35 PM
When you had the teeth removed, did they give you Nitrous Oxide first before the other anesthesia?

My son had that done, that way.

A big blast of Nitrous can precipitate PN in some people... it deranges the B12 chemisry.

This is an old study...
Quote:
Arch Surg. 1993 Dec;128(12):1391-5.
Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency.
Flippo TS1, Holder WD Jr.
Author information
Abstract

Vitamin B12 (cyanocobalamin) is an integral component of two biochemical reactions in man: the conversion of L-methylmalonyl coenzyme A into succinyl coenzyme A and the formation of methionine by methylation of homocysteine. The transmethylation reaction is essential to DNA synthesis and to the maintenance of the myelin sheath by the methylation of myelin basic protein. Active vitamin B12 contains cobalt in its reduced form (Co+). Nitrous oxide produces irreversible oxidation to the Co++ and Co forms that renders vitamin B12 inactive. Five cases (four from the literature and one new case) are presented in which patients unsuspected of having vitamin B12 deficiency developed subacute combined degeneration of the spinal cord following nitrous oxide anesthesia. Patients with vitamin B12 deficiency are exceedingly sensitive to neurologic deterioration following nitrous oxide anesthesia. If unrecognized, the neurologic deterioration becomes irreversible and may result in death.

PMID:
8250714
[PubMed - indexed for MEDLINE]
from http://www.ncbi.nlm.nih.gov/pubmed/8250714

also:
http://www.ajnr.org/content/19/5/894.full.pdf

It is also possible that the Amoxicillin disrupted your GI bacteria enough to change something for you. Do you recall any loose stools or diarrhea from it? Replacing some bacteria with a good Kefir (like Lifeway which has 12 different strains)...may help you restore yourself. Disturbances of GI bacteria are a hot topic right now and suggested for many neurological problems today in the research. Yogurt typically does not have many active cultures, so Kefir would be better. I think this is definitely worth a try.

Tunaboy 03-22-2015 04:15 PM
Quote:
Originally Posted by mrsD (Post 1131030)
When you had the teeth removed, did they give you Nitrous Oxide first before the other anesthesia?

My son had that done, that way.

A big blast of Nitrous can precipitate PN in some people... it deranges the B12 chemisry.

This is an old study...

It is also possible that the Amoxicillin disrupted your GI bacteria enough to change something for you. Do you recall any loose stools or diarrhea from it? Replacing some bacteria with a good Kefir (like Lifeway which has 12 different strains)...may help you restore yourself. Disturbances of GI bacteria are a hot topic right now and suggested for many neurological problems today in the research. Yogurt typically does not have many active cultures, so Kefir would be better. I think this is definitely worth a try.
I don't think I was given NO, but I can find out. I have a feeling it was the Amoxicillin or combination of that and anesthesia that set it off. I don't recall having bowel issues afterwards. So just start eating Kefir products? I was taking the pearl probiotic months ago. Maybe I should start those up again.

mrsD 03-22-2015 04:20 PM
Yes, do find out...

Lifeway Kefir is very good...tastes delicious and is not expensive.
It has 12 live strains in it. It is in many stores now...even Costco.

A supplement form that is also good is this:
http://www.amazon.com/gp/product/B00...?ie=UTF8&psc=1

I found it on a review page that listed the top 10 probiotics.

tkerlinger 03-22-2015 04:24 PM
Did you get a flu shot last fall.........there may be a connection!

Tom K

Coriny 03-22-2015 07:27 PM
Quote:
Originally Posted by UTGrad (Post 1130988)
Sounds like me. I'll be 35 in June and this neuropathy started out of the blue. Welcome bud.
I, too, started having problems after dental work!! I sure hope I can find a neurologist to listen!!

Tunaboy 03-22-2015 08:19 PM
Quote:
Originally Posted by Coriny (Post 1131086)
I, too, started having problems after dental work!! I sure hope I can find a neurologist to listen!!
Yeah same here. My neuro says my surgery could have triggered the condition. Also a bad reaction to Amoxicillin could be the cause as well. I'm going for more testing on tuesday and possibly seeing another neuro as well. Will keep you posted.

tkerlinger 03-22-2015 08:46 PM
:D.........it could also be caused by an immunoreaction to the seasonal flu shot(Guillain Barre - CIDP).......did you get one last year? The timing coincides with when most people get the shot.

Tom K

Tunaboy 03-22-2015 09:48 PM
Quote:
Originally Posted by tkerlinger (Post 1131108)
:D.........it could also be caused by an immunoreaction to the seasonal flu shot(Guillain Barre - CIDP).......did you get one last year? The timing coincides with when most people get the shot.

Tom K
No I always stayed away from vaccinations.

tkerlinger 03-22-2015 10:32 PM
OK....good.....but your symptoms still sound like GB/CIDP could be a possibility, and I'm not kidding about early diagnosis being very very important. Be sure your Neuro Dr. is looking strongly at the possibility.

I am traveling early tomorrow to take care of my disabled 35 yr old daughter (CIDP), so I do not have the time tonight......but soon I will come back to share her story and the very real link between the flu shot and GB/CIDP.

Tom K

Coriny 03-23-2015 12:22 AM
Quote:
Originally Posted by Tunaboy (Post 1131124)
No I always stayed away from vaccinations.
I received the vaccination for years. Have not had it for the past 2.

Neuroproblem 03-23-2015 03:09 AM
Quote:
Originally Posted by Tunaboy (Post 1131124)
No I always stayed away from vaccinations.
please dont stay away from vaccination, because you believe they cause more harm then good. vaccines for flu, MEASLES, tdap vaccine helps prevent the spread of those diseases. As for your nerve injury, did they ever tell you why it happened?

madisongrrl 03-23-2015 11:34 AM
Quote:
Originally Posted by Neuroproblem (Post 1131170)
please dont stay away from vaccination, because you believe they cause more harm then good. vaccines for flu, MEASLES, tdap vaccine helps prevent the spread of those diseases. As for your nerve injury, did they ever tell you why it happened?
I wouldn't put the flu shot in the same category as Measles. The literature on the flu data is not as sound as people think, especially for healthy populations. One place to look at a review of this data would be The Cochrane Review.

I have friend with GBS and his doc told him under no circumstances can he get a flu shot because it can trigger the disease again.

zkrp01 03-23-2015 12:34 PM
60 days after trauma
 
Quote:
Originally Posted by Tunaboy (Post 1131035)
I don't think I was given NO, but I can find out. I have a feeling it was the Amoxicillin or combination of that and anesthesia that set it off. I don't recall having bowel issues afterwards. So just start eating Kefir products? I was taking the pearl probiotic months ago. Maybe I should start those up again.
one night in bed my left side became involved and soon matched my right. I could feel the transfer of involvement and it didn't take over 20 minutes. I hpoefully thought that these feelings were a good thing at the time. If you have lurked here and read stories you know that appointments are slow and the need for answers is paramount. So while you are waiting for answers that may or may not come, Excersise to tolerance, get your sleep, and see if the foods you eat may worsen inflammation. My situation had an acute phase that involved muscle wasting and loss of balance. I do not write this to alarm you as all stories are different. My legs got weaker and after smacking the pavement about two or three times, I got me a walker. 2 yrs later I am practicing in the house walking freely. I feel that returning strength is dependent upon nerve healing rather than physical training as I have pushed it and and found that this problem has its own timetable,sllloooww. So study for Mitochondrial health and keep learning. I use a gyro bike daily to keep my knees unlocked, it really helps. I listen to classic rock and a minimum of three songs plus commercials. The only other thing that has helped (besides pain meds) is Mortons Epsom Salt Lotion for burning tender tops of feet. Good Luck, Ken in Texas.

Tunaboy 03-23-2015 09:24 PM
Quote:
Originally Posted by Neuroproblem (Post 1131170)
please dont stay away from vaccination, because you believe they cause more harm then good. vaccines for flu, MEASLES, tdap vaccine helps prevent the spread of those diseases. As for your nerve injury, did they ever tell you why it happened?
I was just told I probably damaged my pereneal nerve, maybe slept on it wrong.

Quote:
Originally Posted by zkrp01 (Post 1131278)
one night in bed my left side became involved and soon matched my right. I could feel the transfer of involvement and it didn't take over 20 minutes. I hpoefully thought that these feelings were a good thing at the time. If you have lurked here and read stories you know that appointments are slow and the need for answers is paramount. So while you are waiting for answers that may or may not come, Excersise to tolerance, get your sleep, and see if the foods you eat may worsen inflammation. My situation had an acute phase that involved muscle wasting and loss of balance. I do not write this to alarm you as all stories are different. My legs got weaker and after smacking the pavement about two or three times, I got me a walker. 2 yrs later I am practicing in the house walking freely. I feel that returning strength is dependent upon nerve healing rather than physical training as I have pushed it and and found that this problem has its own timetable,sllloooww. So study for Mitochondrial health and keep learning. I use a gyro bike daily to keep my knees unlocked, it really helps. I listen to classic rock and a minimum of three songs plus commercials. The only other thing that has helped (besides pain meds) is Mortons Epsom Salt Lotion for burning tender tops of feet. Good Luck, Ken in Texas.
Yes I try to exercise as much as possible. I was actually very active in the gym, mostly weight training. But I haven't gone since last week because I felt like lifting weights just aggravated my symptoms. Now there's no way I can do squats when I am having to expend so much energy just to walk.

Tunaboy 03-24-2015 11:16 PM
Had my EMG today. I was told my nerves/muscles are normal and healthy. How can that be??? I don't think I need a skin biopsy since I don't really have much pain, just a buzzing, asleep sensation, slight burning, muscle spasms, and muscle weakness. What is the point of the EMG anyway? I was told I don't have CIDP. Obviously not yet but the point of coming to the doc is to stop the progression. The repeated EMG tests will just monitor your progress while your condition just gets worse. It doesnt really solve anything.

I am scheduled for more bloodwork this week and a brain/cervical MRI. I just don't get how my muscles seem fine according to the EMG but I still feel weak. But wouldn't I feel pain if there was something wrong with my spine or neck? Like if I slept on it wrong which caused this to start, I for sure would have felt some pain in the morning.

On another weird but good note, I had knee reflexes today. Very strange because 4 days ago the doc hit it tons of times but couldn't get it to budge. Maybe was hitting the wrong spot.

Rosie33 03-25-2015 06:02 AM
Quote:
Originally Posted by Tunaboy (Post 1131675)
Had my EMG today. I was told my nerves/muscles are normal and healthy. How can that be??? I don't think I need a skin biopsy since I don't really have much pain, just a buzzing, asleep sensation, slight burning, muscle spasms, and muscle weakness. What is the point of the EMG anyway? I was told I don't have CIDP. Obviously not yet but the point of coming to the doc is to stop the progression. The repeated EMG tests will just monitor your progress while your condition just gets worse. It doesnt really solve anything.

I am scheduled for more bloodwork this week and a brain/cervical MRI. I just don't get how my muscles seem fine according to the EMG but I still feel weak. But wouldn't I feel pain if there was something wrong with my spine or neck? Like if I slept on it wrong which caused this to start, I for sure would have felt some pain in the morning.

On another weird but good note, I had knee reflexes today. Very strange because 4 days ago the doc hit it tons of times but couldn't get it to budge. Maybe was hitting the wrong spot.
When I had my EMG done the so-called neurologist told me that he didn't see any neuropathy. Because of that he said it was probably small fiber neuropathy. I have had blood work numerous times, a cat scan, MRI, and an EMG. I'm done with all that, and just keeping informed here on these boards. I've made many adjustments as far as nutrition with vitamins and supplements. I love that I am able to connect with so many supportive people here.:grouphug:

My PCP told me it's called idiopathic because the idiot doctors don't know how to handle it!!!

Rosie33 03-25-2015 07:02 AM
Quote:
Originally Posted by mrsD (Post 1131037)
Yes, do find out...

Lifeway Kefir is very good...tastes delicious and is not expensive.
It has 12 live strains in it. It is in many stores now...even Costco.

A supplement form that is also good is this:
http://www.amazon.com/gp/product/B00...?ie=UTF8&psc=1

I found it on a review page that listed the top 10 probiotics.
MRS. D.....I think I remember reading awhile ago that probiotics in capsule form need to be refrigerated? I get mine from a pharmacy in town which are kept refrigerated. and are quite expensive. That is why I have refrained from buying them online.

Tunaboy 04-01-2015 05:15 PM
Quote:
Originally Posted by Rosie33 (Post 1131705)
MRS. D.....I think I remember reading awhile ago that probiotics in capsule form need to be refrigerated? I get mine from a pharmacy in town which are kept refrigerated. and are quite expensive. That is why I have refrained from buying them online.
I read that they need to be refrigerated once opened. That they lose potency once it is exposed to moisture. I ordered the one from above and also garden of life ultra. I'm gonna start with 25 billion a day and gradually move up.

Does anyone know if natural anti-fungals like coconut oil will kill the good bacteria as well?

mrsD 04-01-2015 05:22 PM
The ones I had delivered did not have a refrigerate on them.
But they were delivered very cold...and went into my frig.

I believe they now pack probiotics under nitrogen, so they go
dormant but remain alive. Some very upscale ones now online don't come refrigerated either.

http://www.swansonvitamins.com/blog/...-of-probiotics

Enna70 04-01-2015 08:37 PM
two cents
 
[QUOTE=Tunaboy;1130974]Hey everyone!

After lurking around here for the past week, I've come to the conclusion that you need to be very proactive in finding solutions instead of just relying on the doctor's word. Had my EMG today. I was told my nerves/muscles are normal and healthy. How can that be???


I wanted to support you in a couple of things you said...being proactive is what we need to do...sadly this comes at a cost. But hopefully in the end we find some relief and a little wiser....and as for your positive results....I have CRPS and my nerves respond healthy and look normal...need a good Neuro who knows and listens....:grouphug:

janieg 04-01-2015 09:38 PM
Quote:
Originally Posted by Rosie33 (Post 1131705)
MRS. D.....I think I remember reading awhile ago that probiotics in capsule form need to be refrigerated?.
These don't.


http://www.amazon.com/Jarrow-Formula.../dp/B0013OUKTS


_________________________________________

Tunaboy 04-06-2015 05:53 PM
Well im still waiting for the MRI results. Had a brain and cervical spine done. I will see my neuro tomorrow.

After doing tons of research and trying to figure out this puzzle, i'm wondering if my condition is caused by leaky gut and/or candida overgrowth. Here is my hypothesis. After my wisdom teeth surgery, I was put on a 10 day course of amoxicillin. Simultaneously I was on 800 mg ibuprofen around the clock for 5 of those days. This wreaked havoc on my intestinal health and permeability, allowing toxins, indigested foods, etc to enter my bloodstream. Meanwhile the antibiotics killed all the good bacteria, allowing candida to take over. My immune system then attacks these intruders in my blood stream causing inflammation. The only thing is that I don't have any digestive issues. I do feel/hear some stomach churning but that's it. Regular bowels, no stomach aches, gas, etc. I've been eating as cleanly as possible. Only carbs are sweet potatoes and some fruit. Mostly meat and veggies. No gluten. Only dairy is eggs and kefir. I'm also taking about 50 billion probiotic units daily. Does this sound plausible?

mrsD 04-06-2015 06:05 PM
If you suspect Candida.... taking thiamine or the Benfotiamine is also helpful. This helps metabolize away the excess aldehydes that the Candida dumps into your system.

Tunaboy 04-07-2015 12:54 PM
Quote:
Originally Posted by mrsD (Post 1134082)
If you suspect Candida.... taking thiamine or the Benfotiamine is also helpful. This helps metabolize away the excess aldehydes that the Candida dumps into your system.
After seeing the Neuro she dismissed Candida and said if I had it, then I would feel very sick. My b1 levels are good according to the blood test.

Tunaboy 04-07-2015 12:55 PM
MRI of brain and cervical spine came back normal. Next up is skin biopsy. If this shows up normal then is it all in my head?

mrsD 04-07-2015 01:05 PM
no, not necessarily.... chemical effects on the nerves does not show up until the nerves die back. "in your head" implies imaginary to many people. You are not imagining your sensations. If nothing shows up YET then you should be thankful that you may still reverse and heal some.

anon050715 04-07-2015 09:15 PM
Quote:
Originally Posted by Tunaboy (Post 1134230)
MRI of brain and cervical spine came back normal. Next up is skin biopsy. If this shows up normal then is it all in my head?

Mine came back normal as well. Did you request the skin biopsy or did they already have it set up as part of your tests?

Tunaboy 04-07-2015 09:31 PM
Quote:
Originally Posted by UTGrad (Post 1134317)
Mine came back normal as well. Did you request the skin biopsy or did they already have it set up as part of your tests?
The neuro recommended it to me as the next thing to test. I am also planning to see a rheumatologist to do more testing to get to the cause. I feel like this is autoimmune in nature or caused by a virus. I do remember having night sweats for a few nights when my symptoms first started. Also my lymph nodes in my neck are slightly swollen but haven't gotten any bigger.

Tunaboy 03-02-2019 09:40 PM
Update:

Hey everyone,

It's been a while since i've been here. I promised myself I would come back and update everyone and hopefully help or reassure others going through the same thing. It was a real low point in my life but I've been living a normal life and everything is great! To make a long story short, I went to numerous doctors and tried so many treatments and kept searching for a cause. Never found out. Finally got a skin biopsy and it came back positive. I tried IVIG and didn't notice a thing. When my symptoms were first coming on, it started with my feet, then hands, and then it spread everywhere. I'd get random pinpricks, ice cube rubbing sensations, stabbing, and burning in random places including my back and head. My thighs always felt a constant burn, shoulders felt sunburned, and of course my feet. Limbs would fall asleep very fast, especially my hands during sleep. I opted not to start any pain meds because I didn't want to develop a tolerance. I only took prednisone for a few days and my symptoms got noticeably worse. I tried nortriptylene a few times and it didn't do much. Surprisingly, klonopin reduced the pain almost completely. After going to so many docs with no answers, I went to get tested for Lyme. It came back positive for igenex (which I believe is very common) but negative from stonybrook. I honestly don't think it was Lyme but I did take some antibiotics anyway for a few months (azithromycin and minocycline). Eventually I just decided to quit them for health reasons. My symptoms gradually got better and now I don't take anything and I only get slight burning in my feet once in a while. For overall health I do weight training 3 times a week, and take fish oil and vitamin D. I think the hardest part was mental and reading so many doom and gloom stories. But eventually you reach a new baseline and accept it. I honestly forget I even have it now and it hasn't stopped me from living a normal life at all. Been traveling the world and recently got a new job :). Let me know if you have any questions and i'll make an effort to check back or just pm me. Stay positive!

Lonestar 06-10-2019 09:55 PM
Hey Tunaboy,

Glad to hear you've seen such an improvement in your symptoms!

Out of curiosity, how long did it take from the onset of your symptoms before you started to see improvement and over what period of time did things improve? Which symptoms were the first to calm down as things reversed?

Ragtop262 06-14-2019 01:53 PM
Hey Tunaboy, I recall your story from back when I first started on this journey. I haven't tried as many medications a you have - I was on heavy doses of Gabapentin for a while, but now on just a small dose to take the edge off. (And a number of supplements as well)

Much like you, things have calmed down, and I still feel it every day (especially the feet) - but it doesn't significantly impact my life at this point. It's just become the new normal.

I do like to stop back from time to time and check in. The forum has become pretty quiet since Mrs. D's unfortunate health problems. I was just thinking that this is about the 5 year anniversary of the start of my journey - so decided to stop in and see what was happening.


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