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-   -   Spinal cord simulator for relatively mild CRPS (https://www.neurotalk.org/scs-and-pain-pumps/218412-spinal-cord-simulator-relatively-mild-crps.html)

shimmysho 04-05-2015 09:06 AM

Spinal cord simulator for relatively mild CRPS
 
September 2013 I was injured at work -- a bad bone bruise on my left shin. Within 6-8 weeks burning, tingling etc started developing. By December of 2013 I was on crutches -- unable to put any weight on it at all or even touch due to hypersensitivity.
January 2014 crps was mentioned as a possibility for the first time but it wasn't until September 2014 that I was able to be seen by a Dr who is actually trained in dealing with this and I was "officially" diagnosed in Nov 2014.
I've done lots of physical therapy, meds, multiple sympathic nerve blocks and am doing loads better than I was. By Febuary 2015 I was doing so well I asked for my work restrictions to be changed from 4 hours a day (with limited walking/standing) to 6 hours a day (resting for 15 minutes every hour).
At this point it's starting to flare up again. Discoloration, swelling, burning/tingling has come back. I'm taking nerontin and we've increased the dosage but don't need pain meds.
I'm continuing with the same work restrictions -- the benefit of doing close to my usual job/routine still outweigh the physical discomfort. My doctor doesn't want to do another sympathic nerve block unless the pain becomes unbearable but is continuing to push the scs as the best treatment.
I've read that it's better to have the stimulator implanted before you get to really hardcore levels of pain -- that it's more effective?
Dr's goal is getting a "normal" life back --- able to work/play with my kids etc.
Looking for any feedback -- I know people who have had scs but their situations were vastly different than mine
Thanks

Mark56 04-09-2015 11:18 PM

Hey Shimmy
 
I don't remember stim users who have dealt with CRPS in these threads. I write in hope someone will speak up.

Hey Out There! Please beat the bushes for Shimmy!

I KNOW it has helped me with certain chronic nerve pain, and I have been able to resume career and some of my "pre-wreck" life with its benefit.

In hopes for you,
M56

PamelaJune 04-10-2015 07:22 PM

RSD CRPS thread
 
hey Shimmy

I think I recall back in my early days of using neuro talk there were some of the users on the rsd thread who had scs implants. Maybe ask on that thread as well. As Dr Smith points out, those who have gotten them and got we'll have moved on so often we don't hear much for them after their recovery. I wish you well my friend, pain is tortuous to live with I know, but, it can make us stronger and I pray you find strength to fight on.


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