NeuroTalk Support Groups

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-   Spinal Disorders & Back Pain (https://www.neurotalk.org/spinal-disorders-and-back-pain/)
-   -   Tethered Spinal Cord (https://www.neurotalk.org/spinal-disorders-and-back-pain/218673-tethered-spinal-cord.html)

Bwilliams14 04-10-2015 11:26 PM

Tethered Spinal Cord
 
Hi!

I am 24 and I was born with a tethered spinal cord. I have had four major spinal surgeries to untether (throughout my life). None of them have been successful in untethering my cord because there is so much scar tissue now. I have been told I'll progressively lose function of my lower extremities. I have lost sensation in both feet and many areas of my lower legs (right more than left). I also lost my R calf and then my left. My legs are getting weaker, my back hurts a lot, and I don't want to complain all time, but it's difficult. We can't always chose what life throws at us, but we can chose how we handle it. Anyone have a tethered cord? I haven't met anyone else with it before.

EnglishDave 04-11-2015 05:29 PM

Hi BWilliams,
First, here is a currently active thread about exactly this subject.

http://neurotalk.psychcentral.com/thread129013-3.html

You can also use the Search function to find other relevant Threads and Posts.

I must say your attitude is admirable, wander around all the Forums where you will receive a warm welcome and support, not only for your condition, but for the Chronic Pain too.

Dave.

Lara 04-11-2015 06:12 PM

Hello Bwilliams,

Welcome to the NeuroTalk Support Groups!

Here is the Forum Search feature that Dave has mentioned.
It's a very handy tool.

http://neurotalk.psychcentral.com/search.php

take care.


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