Involuntary movement during MRI?
 

I have a quick question. A sore on my toe has been taking a long time to heal, more than two months. It has finally closed up and seems to be forming skin, but is still ugly and I have to wear a pressure boot or it opens back up. The infection has cleared.

My podiatrist wanted an MRI to see if a cartilage formation was causing the problem. I just came back from it, really upset and feeling like a loser because the tech said i kept moving my toes. Now I have no small nerve fibers in my feet and lower legs, and I cannot voluntarily move my toes, but they do move on their own sometimes. Also the muscles in back of my leg are extremely tight from the CMT and large muscle neuropathy and tightening those muscles does put a lot of pressure on the very week toe muscles, like marionette strings.

I take Baclofen for spasticity, but evidently it didn't do enough. I was trying very hard not to move, and I have never had any problem with other MRIs, but I really have no control over my toes and feet.
My questions are- has anyone else had this problem, where it is impossible to immobilize your feet for an MRI? Would it have worked better if I had taken 10mg of Valium before the test to try and relax the muscles?

The position I was in, with my leg stretched out straight, is one that causes a great deal of pain as time goes on due to the tightness of the muscles, but even at the beginning of the test she was having trouble getting a clear picture. She completely abandoned the idea of trying it with dye since she couldn't find my veins anyway. All in all it was a rough afternoon and now my legs and feelings are both hurt. I tried to explain the physiology behind this but I felt like she didn't believe me. "Well, you see I have no nerves in my feet and legs and the muscles go into spasms...". I have a horror of not being a "good patient" and I feel really down on myself right now although I have no idea what I could have done.

I have no experience with any of this and wish I could help, but I'm here to tell you to not be hard on yourself! This reaction was totally out of your control, and agree that it was more of the tech/docs lack of education and patient care. I'm sorry yiu had to experience that. I think we all can relate to the extreme frusterations with our bodies!!! Luckily we all have sharp minds and caring souls. The PN can't rob any of us from those qualities!!

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The Mri technician wasnt aware of your condition. involuntary movement can be RLS? restless leg syndrome, i had it pretty bad the first few days my neuropathies suddenly appear. I think its also the bodies way to move naturally when still as well though.
I was in an MRI for an hour(i think thats how long it took to see my head), and i felt like i wanted to move constantly, and i also dint have support for my legs, so i had to kept it bent in that position for almost half an hour, until they put a pillow under them to relieve the pressure, this was 2 years before my neuropathy started, and for an unrelated reason(which my current pcp/other doctors used against me). maybe you can have a pillow under your legs, so it can be comfortable

Thank you for the replies! I agree that the technician could gave been nicer, my husband believes that it being late Friday afternoon didn't help, but they gave me that appointment,
RLS is a common side effect of CMT, I have had it since I was a child, but it has settled down now. Because this was of the toe it had to be in a very specific position, no pillow possible. which put a lot of stress on short, weakened muscles, hence these were more spasms than RLS. I have no feeling below the knee so my feet could have been tap dancing on mars from my perspective.
It is a hot button issue for me anytime I feel disbelieved. I think it is time to find a psychologist.

Can't they
 

use a pressure boot or some form of immobilization? I would hunt for a radiological supervisor and discuss protocols for uncontrolable appendages. I agree w/ you husband, by Friday noon everyone has already checked their brains into get the hell outta here mode. Better luck next time, Ken in Texas.