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-   -   Ncv cause further damage? (https://www.neurotalk.org/peripheral-neuropathy/219069-ncv-cause-damage.html)

canagirl 04-20-2015 07:53 AM

Ncv cause further damage?
 
My doc wants to do another emg/ncv. I had one in feb ( Ive had 3 in the last year). I'm not sure why. I sent her a letter ecplaining all my symptoms in an attempt to get her to change her coding for insurance coverage of my skin biopsy. It worked but now she wants another emg.

I'm worried that's it's going to cause more damage to my already physically damaged nerves. What do u guys think? I kind of want to cus I don't think they tested the right parts before but it hurts so mych and I'm worried about worsening my condition. I know it won't change anything so why do it right? Ugh, I want to know though cus I believe it's sfn but also large fiber from the acupuncture.

canagirl 04-20-2015 08:05 AM

Tag in another question here.

I'm thinking of having an mrn to show where my nerves are phyßically injured. If I did this, could dr do surgical repair of many nerves? Is it too late ? My injury was 4 months ago

en bloc 04-20-2015 08:25 AM

I'm not sure why they would want to do yet another (4th) EMG/NCS, unless there was some indication on any of the first ones that a problem existed...which it didn't seem to be the case.

They know the EMG/NCS cannot detect SFN, but they always start with this test and always seem to put up a fight to do the skin biopsy...which is the ONLY way to assess those small fibers.

With the allodynia you are experiencing now, I have no doubt the test will be quite uncomfortable for you. You should have a discussion about whether this is really necessary when you go on Tuesday.

Unless you have some sort of single injury to the spine somewhere that is causing all this widespread pain, I don't see how you can have a surgical repair of nerves all over your body. I'm not sure I understood your question properly...if this is what you were even asking.

Kitt 04-20-2015 08:26 AM

I don't see how it could cause further damage. They are done all the time for many reasons.

anon050715 04-20-2015 08:37 AM

Good luck at your spot tomorrow

Susanne C. 04-20-2015 08:50 AM

I don't think it can cause further damage, but it also seems unnecessary. Many people experience a flare up of symptoms, especially the electric shock/ tingling sensations afterwards but that passes.
Haven't your tests all been negative? It seems like you need a skin biopsy now rather than another EMG/NCS.

canagirl 04-20-2015 08:52 AM

En bloc , that is what I was asking. There are multiple spots aling my spine that I am thinking would need to be repaired and then hopefully the nerves would regrow aling the rest of the length? I know highly doubtful. Just still getting Moore and more scared as it seems the nerves are damaged all the way to the ends now. Like the pain into scalp has slowly spread sides to my era and lower jaw then radiates out from lower jaw by my ear towards my nose and mouth and not only pain and burning but squeezing too. And that's just one example.

U r right about the ncv not showing much ( carpel tunnel in the wrist they tested and apparently an old injury in the leg they tested they said it was nothing. )
I'm thinking she wants to do it in more areas? I know it would cause pain but would it injure my nerves further? I believe it's not jut sfn bit large fiber too ( from acupuncture)

canagirl 04-20-2015 09:03 AM

Ugh..!! I can't lean on my back at all it hurts so much in the needle sites. Is that normal normal? What I going to do???? Even if GABA starts helping I'm still going to be freaking out, I know it. I will constantly worry about how bad it's actually getting and am I harming myslef without realizing it.
It just seems too hard..every minute is a struggle why put myslef through this?
I know people get relief and go on living but what happens if they don't work? Or I get some releif but still not enough? Or the meds stop working? I'm only 31. If I was 60 I would be less concerned bc I wouldn't need meds to last for as many years.

Susanne C. 04-20-2015 09:07 AM

When you say GABA do you mean Gabapentin or the supplement GABA? They are very different. We all assume it is Gabapentin since you have a prescription, but I am confused.

canagirl 04-20-2015 09:24 AM

Quote:

Originally Posted by Susanne C. (Post 1136995)
When you say GABA do you mean Gabapentin or the supplement GABA? They are very different. We all assume it is Gabapentin since you have a prescription, but I am confused.

Sorry gaba


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