Dejerine–Roussy syndrome Thalamus Stroke
 

Hello, I had a stroke March 27th, 2015 due to Diabetes in the Thalamus on the right side. It has been horrible with pins and needles pain that gets worse every day. My Neuro said I had Dejerine–Roussy syndrome today and has put me on several medications including Cymbalta, Lamtrigine, and Gabapentin. I was wondering if anyone else has had this happen? My life has changed forever and I am looking for support. This pain is hard to explain and it affects my left side head, face, eye, neck, ear, shoulder, and trunk. It is agony when anything touches that side. It feels like jolts of hot electricity and I am having such a hard time dealing with it. Any feedback suggestions would be greatly appreciated.

Welcome lisas49. :Wave-Hello:

Hello lisas49,

Welcome to the NeuroTalk Support Groups.

I'm sorry for the reasons that bring you here.

There is a Stroke Forum here.

You may also like to use the forum search feature below to search for other threads and posts from people who have Dejerine-Roussy Syndrome. You may find them under Thalamic Pain Syndrome and Central Pain Syndrome as well.
http://neurotalk.psychcentral.com/search.php

Here is the Chronic Pain Forum

I'm sure you'll find support and information from the members here.
Take care there.

Thalamic stroke, unfortunately--
 

--can resultin some of the worst pain known to humans. Damage in the thalamus, which is primarily a sensory relay center, can result in pain sensations anywhere in the the body, depending on which sensory tracts are damaged. The pain is not only often severe but burning and dysethetic in nature.

This condition, often referred to as Central Pain Syndrome (as well as Dejerine-Roussy syndrome), can also result from multiple sclerosis that attacks the area, as well as some other common events, such as the combined degeneration of severe B12 deficiency.

See:

centralpain.org

http://centralpainsyndromefoundation.com/

Nice to meet you!!