Shaky hands tremor
 

Is this supposed to be part of small fiber neuropathy? My doctor doesn't give me any input about how shaky my hands are (especially the left one). It is really flared up today and all kinds of muscle spasms in my neck, traps, and shoulders. I thought I was getting better. Very upset. I had to take a valium yesterday during the day to calm the spasms. Usually during the day the pain is manageable through non drug techniques. I had to do it again today and I'm very upset about that also because I don't like to take anything. I don't understand the severe muscle spasms in my neck and shoulders and the tremor. It makes me think more and more that this is something lyme like.
I am trying not to get too upset. So far I have not entered back into the debilitating onset that I experienced from Sept through January. My cognitive function is still not back to normal, but is no where near how bad it was then.
Anyone other idiopathic PNers have this tremor visible shakiness? I'm not just talking about the internal buzzing/vibrating- I mean you can actually see it.

Hi,

I have shaky hands. Yes, they visibly shake. Also, I can see the muscle fasciclations, if that is what you are referring to. It may move 10-20 times, but not near as severe as some of the others discuss on here, or what you are referring to in this post. They happen mostly in my legs, shoulders, abdomen, and back. My hands, in the mornings some, but especially when I am really worn out after physical activity. I have wondering if anxiety was the cause, but now I am thinking no. I have been so in my head about all my symptoms. It is a constant puzzle that I am frankly tired of trying to figure out!! I have relatively consistent symptoms from day to day, but some come and go, wax and wane. I have been diagnosed with a tick borne illness, refer to my most recent post, but no other diagnosis yet. I am starting to reconsider LYME myself since co-infections can occur. I am sorry for your recent relapse of symptoms. Praying for relief soon.

Hi Emily,
Did most of your pain start in your neck? That was how mine started and I was jerked around for 4 months with them thinking it was herniated cervical disks. What a waste of time.

Hi,

I started having burning feet several months prior to Jan. And these episodes starting coming on more frequently, day and night, and I experienced sensitive painful feet when standing or walking. Late Jan. I had very bad neck pain and shoulder pain along with pretty severe headaches, from frontal headaches to headaches in the back of my scull. Then shortly after came extreme weakness in my arms, then legs. Heart issues, shortness of breath, muscle twitches, tingling in all limbs and back, balance issues, dizziness, cramping legs, and more. I have had days where I could hardly hold my head up and feelings of a very heavy head, still do so I am limited on how long I can stay away from a couch! That neck pain subsided after two weeks I would say and for the last two weeks it has returned. It is hard for me to ride or drive in the vehicle as I feel it throughout my spine. I am here for you if you need to talk or have any additional questions! Praying for you. How did your MRI turn out? I have one scheduled on June 2. I have EMG/NCS tomorrow. I don't know what to think. My primary doc is not convinced that the Echlicholosis is causing all my symptoms. I am scared it may have gone undiagnosed for too long and has now been impacting my neuro system or that I potentially have Lyme as well. I still have to retest for the Rocky mountain spotted fever, however my primary is not too concerned about it. I am being treated with the Doxy that is used in both Ech and RMSF infections. GRR.....