Gets worse before it gets better???
 

For those that have gotten better with their PN, have you noticed that your symptoms get worse before they get better? This week has been the absolute worst. The shooting pain has not stopped for 2 days straight. Someone said to me that maybe it's the old saying that things always get worse before they get better. I also read somewhere that as the nerves recover they tend to produce more pain.

Thanks

Yes--
 

--this is a phenomenon that has been reported, as often, regrowing nerves (and nerves regrow very slowly--even under the best of conditions a figure of 1mm/day is often cited) must fight their way through or around other tissues, and the sensations such incompletely connected nerves record are often interpreted by the brain in unusual ways.

It is difficult to know if one's symptoms are getting better except in longer term retrospect, one reason many of us keep long term symptom diaries. Many of us are prone to symptom "flares" as well, which may eventually "die down" to more baseline symptom levels, or even, hopefully, lower baseline levels.

I was wondering about stinging specifically. I have only had this for a few months. Is it possible that there is some regrowing with that symptom, or are things just getting worse?

My neuropathy is definitely changing to more of a stinging when I am at rest vs shooting. I am also having more twitches and wet drop feelings everywhere. Im not sure what it means, but it isn't worse- just different and not quite as bad. Hoping that could mean healing.

Time line
 

Hi Glenntaj - I find your posts very informative- thank you. My neuropathy (foot drop) is due to a surgeon error (sutured around the common peroneal nerve - 1 week before discovered). I have had all the symptoms that you described - tingling zapping, tightening skin etc. it is now 7 weeks post op of removal of the suture and everything is starting to slow down. I am just interested in your timeline for recovery? Kind regards Vanessa

Butting in
 

Until Glenneta replies, I had foot drop after a hyperexrension of my knee. I remember that the recovery was slow. Being careful not to fall for about a month and within 5 month was not really aware of it anymore. Used L-shaped prosthetic for a while at first to keep from tripping. Good Luck, Ken in Texas.

nerve recovery symptoms
 

Hi Ken, thanks for responding. I am wondering if you are able to describe to me your recovery process over those 5 months and the type of rehab you undertook. Much appreciated.

I am wondering too. I started with a foot drop, then the tingling, then the shocks. I wore an air cast for three months. Later I took Gabapentin and I was a little better. Just tired all the time with sore feet and hardly any shocks. A year later my hands started to claw up in the mornings and hurt all the time. I now habe pinched nerves in my elbows, wrists and neck. They say that this is common and that they can't do anything because it's minor and that most of the pain I feel in my arms and hands is caused by nueropathy. I also wake up screaming with muscle cramps in my legs. I never in a million years thought that it would get worse like this. I am still very much in denial about my future. I would really lobe to know what the next syptoms are too. Sorry to say so much on your thread, I just feel like we are searching for the same thing.

Depending on the extent of the surgical error--
 

--that is, how much of the nerve itself was severed/separated, full recovery may take months to years, if it happens at all.

Traumatic nerve injuries that involve crush or stretch are usually easier and quicker to recover from than those that involve severance or separation. In the latter cases there has been some experimental use of nerve grafting to encourage the separated ends of the nerve tracts to reconnect, but this is far from a certain technique.

It may just be a process of waiting, monitoring, and keeping track. DO expect there to be some weird sensations, and symptom upticks, during the process.

I am glad to be able to chime in on this one!
When I was 15 my pinky finger artery and nerve was cut in half and had to be repaired by a plastic surgeon. It took years to have normal sensation. It had numb spots and tingly sensations for at least 3 years and then if I remember correctly, it took about 6-7 years to have complete sensation back.
I always think of this as encouragement that nerves can heal. It's a matter of finding the cause though- that deters that from happening for those of us that can't figure out what is attacking the nerves.