Just got out of hospital for
 

Went in cause weakness was worse. I have a lower gi bleed, vitamin d deficient and ended up getting my appendix taken out when cat scan showed them inflamed. Saw neuro today. Upped pred and I am now waiting for nurse to call to schedule next round of ivig. I'm back to wheelchair and not able to do much more than type for a few minutes.

I NEED A BREAK!!

SN emg is happening next week and Muscle biopsy in early June. This is NOT how my life is supposed to be.

Ok enough self pity had to get that out!

Also was diagnosed with orthostatic hypotension from positive tilt table test a few weeks ago. Gotta "love"what life plans for us while were trying to plan other things

BTW my appendictis was atypical since I didn't have most of the symptoms. They think the prednisone was masking things so thankfully they did the cat scan

Anyone want some lemonade?

Hugs everyone

Good Grief!! You are one lucky person all things considered! Please take care and get well soon.