I get so nervous going to the doctor for my PCS?
 

Hi all,

Just another thread from me, as I am loving the forums (I joined a month or two ago) and I love having all these questions I've had with PCS answered. Anyway, I've been suffering from PCS for almost 8 months now. Hit my head way back in October.

My symptoms:
Ever since then I've been changed and I don't feel right. I'm in this constant dreamy feeling/fog and everything feels unreal and not right. Next, if I do too much my brain gets tired and I break down almost, I feel so weird I can't do anything. I could go on about depression and anxiety, but I'm going to stop there lol cause I explain my symptoms every post.

So, I am here today to tell you that I'm nervous, and I don't know why. Every time I see a doctor about my PCS I get so nervous that it's hard to explain my symtoms. Today, I'm going back to my concussion specialist who I've been to every month or so, he just kinda does what a neurologist does. Prescribes meds, gives me helpful ways of how to feel better, Etc. he does help. I just get nervous I don't know why? Anyone else?

If you have things you need to tell this concussion specialist, write them down so you can read them to the doctor.

I had alot of anxiety too -fear of forgetting to tell the docs something important so I started making lists early of what I needed to talk about. The day before my appt I would go over my list and make it more efficient - point form - easy to read.

Also think about whats happening on the way to the appt and in the waiting room - is it a long drive, is the waiting room noisy? Is the doctor often running behind so you have a long wait? And what is the doctor telling you? I was very fearful that my symptoms were not going to improve because they took so very long to actually start to improve and I felt totally overwhelmed when I was told that I would have to see yet another specialist. Or do yet another therapy when I hardly had the energy to eat or bathe.

If you can, find a way to make yourself feel better - listen to music, tell the receptionist you need a quiet place to sit and compose yourself before your appt - I walk the hallway at my occupational therapists office - just cannot sit in there- and they come out and get me. see what works for you.

Good luck!

Anxiety and nervousness were a big problem for me during the first year of my recovery. Have you tried anything to help relieve that? Looking back I think that the anxiety was what gave me a lot of the brain fog / unreal feeling that I had. That along with the vestibular/vision problems I was having.

Some things that helped relieve my anxiety:
-guided meditations (google UCLA and meditation for free ones)
-manual therapy by my PT
-massage
-epsom salt baths
-acupuncture
-vestibular therapy to help my vision

I was also put on an anti depressant to help with the anxiety. I think it did help some, but I would try some of the things listed above before doing meds.

Hi ridinrollercoaster,


Sorry the late response, did not know i gotten anymore responses to this thread.


Anyway, the unreal feeling your speaking of is my worst troublesome symptom. It's there 24/7 and never goes away. I think it's a combination of anxiety and I have an upper neck injury.


How long did it take for your anxiety to get better? When this anxiety went away, this unreal feeling went away also?

Sam,

I am 16 months post injury. I still have anxiety daily but the good news is it is abating.

I am experiencing spells of a couple hours at a whack during the day where it becomes normal and am finding it easier to be still.

My wife rubs my head every night. For most of this adventure as she rubbed it I could feel the anxiety rise and eventually it would start to relax about half hour into her doing it. Last night I told her that of late I start to relax immediately...no more waiting for it to crest before I can finally feel it lose its grip on me for awhile.

Bud

Im right there with you

Like I want to please the doctor by saying everything is alright, so to bring up symptoms I get nervous like they maybe wont believe me, but at the end of the day anything you are experiencing is real and we have to find a way to get our messages to them.

hope you feel better soon