Sleep paralysis?
 

Hi, I'm new, and actually have never joined a forum of any kind so I'm new to all of this in general.

I was wondering if anyone with MG has ever experienced sleep paralysis and if so is it common? I'm in the diagnosis process and I remembered I forgot to tell my neurologist about it.

I'm new, too, to learning about MG and am wondering if you could be more explicit about sleep paralysis and how this manifests? Thank you.

While I'm sleeping all of a sudden my whole body gets paralyzed and I'm wide awake but unable to move and I have a hard time breathing, it's last for less then 10 minutes but is very scary, I hear a loud buzzing sound before it happens.
I don't know if It could possibly be related to MG or some other issue. But I figured I'd ask.

Sounds scary. Hope you get an answer, and soon. Thanks for responding.

I think that sleep paralysis is not uncommon for people with or without MG. I have had episodes. It is scary for sure. I think it has something to do with being stuck between being awake and being asleep.

I used to have episodes of sleep paralysis like you describe, also with the buzzing sound and an intense vibration feeling. That was before I had MG, though. The reason I had sleep paralysis back then was that I was sleep-deprived because I had babies. I would have an episode of sleep paralysis when my body was exhausted but my mind was telling me I should wake up. That makes sense. My mind was awake, but my body was asleep.

I don't know if everyone's experience is like mine, but you should see if getting more sleep helps--or, if you can't get more sleep, at least journal your episodes in the hopes of finding out what triggers them.

Abby

Thank you all very much!
I don't get a lot of sleep (my children are 2 1/2 and 4 years old) along with my legs cramping very bad at night.
IV experience the sleep paralysis often and was concerned it may have something to do with my muscles. But from the looks of it it seems to be unrelated. Which is a good thing I beleive :)

Oh, I just remembered that I know a trick for breaking a state of paralysis! You wiggle your tongue. Often you will find that when you can't move anything else, you can move your tongue, and it's enough to break the paralysis. If you can't move your tongue, move your eyes back and forth rapidly.

Abby

Thank you, I'll have to try that!

i've been experiencing the same thing this past year and was wondering the same thing. thank you!