pseudotumor cerebri
 

I am 54 years old and was dx with this when I was 20 years old..from birth control pills....then they did several spinal taps and steroids. I have suffered with this again...after 2 brain surgeries and a bunch of I don't knows they again dx me with pseudotumor. I had a shunt put in jan of this year. Feb back at hospital...tubing had come undone..wrapped around spinal cord. Surgery was done and shunt placed on my other side...I had to have shunt in belly becuz my head is so messed up from surgery. oh what a time that was!!:(:(:(...take it day by day...some days are good some not....:confused:..will be nice to talk to others with this disease.... thank you ...be blessed

Hello NANAchristy,
Welcome to NeuroTalk. :)

The best way to find other posts or threads concerning pseudotumor cerebri is to use the
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You could also post or check on the
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Let us know if you have any trouble navigating the site. I hope you're able to find those threads.
They're scattered on many different forums. From memory there are a number of them here on the New Members Forum as well.

I'm sure you'll find support and information here.
take care.

Welcome NANAchristy. :Wave-Hello:

Nice to meet you!!
 

Hi
 

Howdy NaNa Christy,
My name is Michelle and I too have pseudotumor cerebri. I'm 45 and have been dx since 2000. I hated diamox so I had an LP shunt put in at the end of 2000. It was working great until recently. I think it has to do with my back deterioration. So in a few months I'll be having a vp shunt put in and a spinal fusion. Good times:confused:
Sorry about all your shunt troubles.I was fortunate to go good for so long.
look forward to hearing from you
Michelle

Greetings!!
 

:Wave-Hello: Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug: