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-   -   Chemo Induced Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/222381-chemo-induced-peripheral-neuropathy.html)

carolinabluetec 07-01-2015 03:56 PM

Chemo Induced Peripheral Neuropathy
 
I had some very mild neuropathy in one foot that manifested itself in very cold weather in January 2014. I was diagnosed with colon cancer in March 2014 and had a surgical resection in May 2014. Since I was a Stage 2 patient I more or less had the choice of chemo or no chemo. Since there is no "right answer" I chose to go the oral chemo route with the generic form of Xeloda. By the 3rd round I was having a side effect known as "hand-foot" syndrome with is fairly common. After a dose reduction I finished 8 rounds even though I was having pain in my hands and feet but the more serious symptoms of HFS had subsided. I am now 6 months out from my last chemo round and I am still having significant pain in my feet (hands are sort of manageable). To get some relief I am taking Gabapentin and using a compounded cream of Baclofen 5% / Amitriptyline HCL 2% / Ketamine HCL 5% in Lipoderm which works very well for a few hours. I have also begun Anodyne therapy hopeful that this will provide an additional long term solution. Has anyone else experienced CIPN and eventually recovered?

Kitt 07-01-2015 04:19 PM

Welcome carolinabluetec. :Wave-Hello:

jurgen975 07-01-2015 11:21 PM

Quote:

Originally Posted by carolinabluetec (Post 1152098)
I had some very mild neuropathy in one foot that manifested itself in very cold weather in January 2014. I was diagnosed with colon cancer in March 2014 and had a surgical resection in May 2014. Since I was a Stage 2 patient I more or less had the choice of chemo or no chemo. Since there is no "right answer" I chose to go the oral chemo route with the generic form of Xeloda. By the 3rd round I was having a side effect known as "hand-foot" syndrome with is fairly common. After a dose reduction I finished 8 rounds even though I was having pain in my hands and feet but the more serious symptoms of HFS had subsided. I am now 6 months out from my last chemo round and I am still having significant pain in my feet (hands are sort of manageable). To get some relief I am taking Gabapentin and using a compounded cream of Baclofen 5% / Amitriptyline HCL 2% / Ketamine HCL 5% in Lipoderm which works very well for a few hours. I have also begun Anodyne therapy hopeful that this will provide an additional long term solution. Has anyone else experienced CIPN and eventually recovered?


Not chemo but something very close a dapsone induced neuropathy
Is the Anodyne therapy helping you?

carolinabluetec 07-02-2015 07:29 AM

Quote:

Originally Posted by jurgen975 (Post 1152200)
Not chemo but something very close a dapsone induced neuropathy
Is the Anodyne therapy helping you?

I have just begun treatment but I can certainly tell the difference when I treat one leg vs the non treated leg. I was referred by my Oncologist to rehab for anodyne therapy.The local hospital does not charge for anodyne therapy if in conjunction will other therapy. Unfortunately, after a battery of tests it was determined that I did not have a serious loss of function (balance, strength, etc) so I did not qualify for rehab, ergo they would not treat me since pain only was not part of the criteria. So, I bought my own machine, which is the Anodyne Freedom model 300 which is designed for lower leg and foot treatment from Amazon. Will keep you posted on progress.


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