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merlynper@yahoo.com 07-08-2015 04:37 PM

Neuro newby
 
I am so grateful to find a place to ask questions. Iam a Registered Nurse but dont have all the answers. I just got out of hospital--I knew they would admit me/ ataxia worse at night or when tired/stressed--look drunk. Slurred speech, I can walk/drive but difficulty waolkinng in evening. I have spent a lot of time correcting this cuz my typing is off--L side effcted worse than R. Husband has to help me up.down stairs--Feel like Im shaking inside. All Cat scans head neg, MRI brain, neck and sping neg. Genetic tests being done but it takes 50 days so I asked my neuro to plz do a ct scan of the chest in the mesntime or lumbar puncture or emg studies--dO SOMETHING !!cuz in the meantime-not knowing is awful--also my breathing is short of breath and if I just stand long enough to cook dinner-Im done. I wwas at the gym 3 months ago but noww neuro said no. I had a ton of labs and acetylcholinne was 15..Is that indicative of myesthenia gravis ? Neuro mentioned Guillian barre and seemed interested acknowledging vaccines. I am scared and already designing a wc :(:(:confused:

Kitt 07-08-2015 05:58 PM

Welcome merlynper. :Wave-Hello:

Darlene 07-09-2015 12:33 AM

Nice to meet you!!
 
:Wave-Hello: Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

General Health Conditions & Rare Disorders:
http://neurotalk.psychcentral.com/forum2.html

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

Lara 07-09-2015 01:36 AM

Hello merlynper,
Welcome to NeuroTalk. :)

You could ask your query about Myasthenia Gravis on the forum below.
Myasthenia Gravis Forum

There's also a Forum Search Feature where you can search with specific keywords across all forums or just one if you want.

You could also check or search the Autoimmune Diseases Forum

fyi - From memory there are many posts regarding Guillain-Barre Syndrome on various different forums here.

Wishing you all the best. It sounds frightening. I hope you get some answers soon.


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