What type of neurologist diagnosed you?
 

I am wondering who is the best for small fiber neuropathy with autonomic dysfunction? There are so many types.

I was diagnosed incorrectly by an idiotic uncaring neurologist. Then I got a second one and it was only incrementally better. My GP is my go to now. He's great as far as it goes and basically my relationship with him is growing. He's basically told me, look you know way more about this than I do. You do your research bring in support and explain yourself. In my last visit he gave me three out of four medications I asked for and wanted to check with a pain doc he knows before giving me the forth because it had Ketamine in it. (topical compounded cream) And if he wants to do anything and I nix it he never complains. I've been able to finally be upfront with someone in the medical establishment. He told ME that he feels his hands are often tied and the whole industry is corrupted and full of uncaring docs in it for the $$ only. It slightly shocked me but in a very good way.

Sorry for the rant but at this point I have a very poor opinion of the neurologists I've seen and I have no idea what type they were. The idiot type IMO.

Generally--
 

--while neurologists are not known for their bedside manners or senses of humor, the best place to go (if you can) for diagnosis and treatment of neuropathy, and neuromuscular conditions in general, are tertiary level medical centers that are also teaching centers. Some of these have specialized subcenters for neuropathy or neuromuscular conditions.

Massachusetts General, Cornell Weill in NYC, Jacksonville Shands, the Jack Miller Center in Chicago, Johns Hopkins in Baltimore, and the University of San Francisco come to mind.

The advantages of these places, beyond the resources, is that many of the practices involve doctors who are also researchers and who are very much informed as to the current state of diagnosis, testing, and treatment. Moreover, at such places often the doctors involved are salaried employees and can therefore spend more time with patients; they're not always looking for volume.

some dont live in the states, so there isnt much help there. It also depends on your insurance, if they are going to cover doctors in other medical centers. Less luck goes to people who do not have insurance and have to rely on socialized health care.

The Mayo Clinic in Rochester, MN is one of the top in the nation for neurology.

My first neurologist 6 months after symptoms was a screw up know it all that prescribed me meds that he said he didn't prescribe!
My pain management doctor sent me to the smartest man she knew.. Who did extra schooling on muscle and never issues. 2 hr visit of a physical.. Walked out w a diagnosis... Year and half later.