Order of symotom progression
 

What I thought might be me getting a tiny bit better might just be progression???

Lately , (last week or two) my sensations seem to be getting a bit more dull. In it's place I seem more " heavy and numb" ( not actually, but feels this way) and much more burning in lower arms and legs that feels like somebody peeled my skin off and it's raw. the electircal sensations, buzzing , twitching etc seem to be slightly more dull or happening with a weaker intensity.

Does this simply mean that my nerves are simply gone ( small fibers) in those areas or that they are now so damaged not as many can send out these signals? Am I headed down a path of no return here in terms of healing?

Why is mine continueing to progrss and change so quickly? Why isn't it stabilizing ( like so many on here claim) or improving. Why the continued rapid progression?

Through out my progression, I had so many things that would ease up just as something else would come on or worsen. I think its the migratory nature of this beast.

I can't for sure say I am stabilizing as I sure hope to improve from my current state, but I am grateful that I can function compared to how I was.

There isn't a day that goes by that I don't have something going on. I can't sit in certain positions or my legs and groin will go numb and I can't walk. My body hurts to move. My connective tissues and joints don't feel stable and hurt. I get dizzy. I have random shooting pains that make me gasp and almost knock me down. My left arm and shoulder had the vibration thing yesterday and now my shoulder feels dislocated. Last night at 2:30, I woke up feeling like my legs and feet were going to explode off of my body from pressure and nerve pain. I get swept over by sudden episodes of fatigue that last for about 1/2 hr. I could keep going on....

I think part of the difference with me is that I do have improvements but my nervous system is still pretty sick. I try to remain calm and deal with it vs panicking about the future. It is not easy. I get upset, but I'm getting used to it and feel hopeful that healing is possible.

Thanks so much healthgi rol for posting ur symptoms. I don't know why but it makes me feel a bit better to know the crazy things that others are experiencing and to know they are ok ( I mean still able to function relatively normally)

Canagirl,
I am going to give you a summary of one of my health counseling sessions in brief- just in case it could be helpful to you or anyone here.

It is very helpful for some people to keep a diary symptoms.


I think it's important to begin each entry with 3 things you are grateful for before going into what you are miserable about and your symptoms (which happens to be therapeutic as well). Also include dosages of pain meds and breakthrough meds, and supplements you take each day.
If you have the time, I also recommend adding what you ate that day to track how different foods affect you.

If I hadn't done this, I wouldn't have been able to remember the order of things or see how much things have changed. So much was a blur of hellish agony, fog, sadness, and fear. Looking back helps me tremendously to cope and not feel sorry for myself. I thought I was going to die.

When I think back in terms of days or weeks, my changes and improvements are imperceptible. Each improvement I've had has taken about 2 months to see a change and some of them have come with setbacks from which at least I have had a quicker rebound than in my worst stages.
Anyway, it might be worth a try. For those I am coaching, it is mandatory homework:)
I can't wait to be able to start my practice again! Not ready yet, but it is going to happen.

Our changing world
 

I consider myself stable but many things changeing still. My bottle of Mortons Epsom Salt Lotion is sitting on the dresser with dust on it. It used to be a nightly ritual when my skin felt raw and burning on my feet. Good Luck, Ken in Texas.