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-   -   Please help me, somehow! (https://www.neurotalk.org/epilepsy/223555-please-help-somehow.html)

chriswinters007 07-25-2015 06:30 AM

Please help me, somehow!
 
I am 33 years old. I've had grand mal seizures since I was 14 years old. I've been to family doctors, neurologists,


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Porkette 07-26-2015 07:27 AM

Hi Chris,
I've had epilepsy for 43 yrs. I have absence (petit mal) complex partial and simple partial seizures. My advice to you is to have your neuro refer you to start seeing an Epileptologist which is a Dr. who specializes in epilepsy. These Drs. are often at University or really big hospitals. Over the yrs. I've seen many different neuro but nobody ever helped me like an Epileptologist did I was able to have brain surgery to reduce my seizures and I take a lot less med on top of that the Dr. found out what was causing me seizures.
One thing you should start doing is keeping track of your seizures. Get a calendar and write down what time your seizure happened and the type of seizure you had also write down when you start and stop your monthly cycle because often seizures happen do to hormonal change each month. By keeping track of your seizures the Dr. may see a pattern in your seizures. I often have them between the 20th-29th of each month.
You may want to start taking vitamin B12 once a day 1000 mcg. this has really reduced my seizures a lot. I've been on at least 10 or more AED's (sz. meds) and not a single one has stopped my seizures but the B12 has reduced them a lot. I wish you the best of luck and May God Bless You!

Sue

Darlene 07-27-2015 03:45 AM

Nice to meet you!!
 

:Wave-Hello: Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:


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