got2bhot
 

I have just discovered this site. I was given a diagnosis 4 years ago as Crest/Scleroderma. My Dr. is not very communicative, and treats me/other patients, that we do not need to know about our condition. That lead me to the internet, which of course can be very educating, but at the same time, not neccessarily appropriate. I felt as if I was given a death sentence. 4 years has passed, and I am much better with the whole idea, not the disease. As time has gone on some things are better and some are worse.

Welcome got2.....I'm not familiar with your diagnosis but wanted to tell you that I'm glad you're here. Great place to find support.

Hi to you
 

Check out our autoimmune forum. Down below this one. It's a little slow but there is a lot of info there.

Welcome to the group. Lots of good people here.

Billye

Hi Got2! Welcome to NeuroTalk!

I second SilverLady's motion to visit the autoimmune section, here's a link: http://neurotalk.psychcentral.com/forumdisplay.php?f=44

((Got2)) It must be very frightening for you to get this diagnosis. Scleroderma just isn't something a lot of people are familiar with in their lives.

In addition to the great emotional support from people here, you might want to educate yourself if your doctor is being an ****. Then again, you probably already have looked around everywhere!

I checked on a couple places where you might find a lot of people in your same condition. NOT that I wouldn't want you here with us! It's just nice to be where people are experiencing the same ailment as you. I'm just thinking about your well being here in case there isn't anyone to share with you about scleroderma. As the other folks said, check out the autoimmune forum.

Here are a couple of links to Sclero message boards and a couple links to places with more information about your sclero.

Scleroderma Foundation message board

Sclero Org message board

MedicineNet information

Mayo Clinic info on Crest

Crest Syndrome

But again, we have tons of people here who are wonderful listeners and supporters so I hope you take advantage of that. I just thought you might want also to find a message board where others share your diagnosis.

Hugs and best wishes. :hug:

GOOD MORNING Got2BHot!!!!

:welcome_sign:

Can't say that I know anything about Crest/Scleroderma... but wanted to take a moment and say HI!!! Welcome to our little corner of the world!!!

We have some really GREAT people here that will help where they can, are the best listener's and have strong shoulder's when you need someone to lean on!!!

It's nice meeting you!!!
Abbie

Hi
 

Hi Got2!

Just wanted to welcome you to NT. I am often on the autoimmune forum and hope to see you there!

Hi there
 

Welcome to NeuroTalk you where given some good places to check out
and i got a feeling your going to like it here. We can learn from each
other and honest Got to tell the truth we are down right funny and i
promise very loving. And we are not afraid of Drs just hit us with a
question and we will make the one's good at that look it up. ;) ;) Sue

Hello G2BH.....
 

It's really great to meet you. I'm glad you found your way onto our site. I'm sure all the nice people here will do everything they can to help you out, in whatever way they can. I hope to see you posting around the forums! Good luck, and great wishes!

Idealist