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-   -   There is talk of a reop (https://www.neurotalk.org/thoracic-outlet-syndrome/223684-talk-reop.html)

Nellyzen 07-27-2015 09:55 PM

There is talk of a reop
 
My neurologist wants me to see another tos surgeon. Obviously I'm still having big problems with pain and PT is not helping.

Has anyone had a successful reop? My scalenes were not removed, only a portion of the first rib.

Jomar 07-27-2015 10:20 PM

How long ago was your surgery?
Has any new imaging or testing been done yet?

The problem could be from the stump rubbing or still causing compression, internal scarring, scalenes, or pec minor. possible some myofascial sx too.

I know in the past a few did have to go back for total rib removal, cleaning up of scar tissue, and /or pec minor or more scalenes..
thorough testing & expert TOS doc will be best way to go...to find the best treatments.

but just guessing - that partial rib might be the troublemaker...

Nellyzen 07-27-2015 11:13 PM

Both surgeries were almost a year ago. I also have myofascial pain syndrome and shoulder impingement syndrome.

veetos 07-28-2015 07:46 AM

Quote:

Originally Posted by Nellyzen (Post 1158153)
My neurologist wants me to see another tos surgeon. Obviously I'm still having big problems with pain and PT is not helping.

Has anyone had a successful reop? My scalenes were not removed, only a portion of the first rib.

I think I've read some of you posts. You have VTOS right? If so, partial rib resection woulnd't completely help you. It helps more for ATOS and NTOS because the neurovascular bundle is more posterior. The vein are more in the front, you would need a complete removal of the first rib from the sternal notch. Do a google image search for reference.

Nellyzen 07-28-2015 12:49 PM

I have Vtos, Atos and Ntos probably. Who knows anymore?

SnappleofDiscord 08-04-2015 04:06 AM

Heya Nellyzen-
Really sorry to hear this, such a let down :(
I'm currently researching options between partial and full rib resections and there seems to be some research on success of re-ops after partial rib resections. What Veetos said is spot on!!
A number of people on here have mentioned Dr Donahue for their re-ops, and the is emerging researching on the need for full rib resection for complete recovery and avoiding developing the issue again.
Can't seem to find the article ATM, but drs Lum, Reifsnyder, and Freischlag and Johns Hopkins did a few papers on it, and reop can have a good chance as long as the issue has been identified.

Tried to catch up on some of your previous posts to familiarize myself with your case. Who was your surgeon?

Nellyzen 08-04-2015 11:34 AM

My surgeon was Farid Gharagozloo. I am having an MRA on the 14th so we will know more about what is going on internally after that.


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