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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Up All Nite In Pain (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/224223-nite-pain.html)

RSD ME 08-07-2015 03:21 AM

Up All Nite In Pain
 
hi all. i was just wondering if anyone else was up. i have had a bad flare all nite from my rsd and can't sleep because of the pain. i'm so tired. i hope everyone else is having a better nite or i should say better morning at this point. i guess i'll try to lie down again. hope you all have a low pain day.:grouphug:

Lara 08-07-2015 03:28 AM

I'm very sorry you can't sleep because of the pain and I'm hoping you feel a lot better when you wake up. sending gentle :hug:

Enna70 08-07-2015 07:27 AM

You know that's the second thing my medication concerning CRPS 2 does...help me sleep.
How very sorry for your bad night. It makes forva miserable day with stress if you will be able to sleep the following nights.
Thanks for sharing, know you are not alone.

BioBased 08-07-2015 07:42 AM

RSD,

How awful. I hope you sleep today.

When I am exhausted, but cannot seem to rest I find the best thing for me to do is watch TV. There are certain shows that knock me out, like The Tudors, even when I am interested in the storyline. If you can find something that interests you, but is boring, you might find it relaxes you into sleep. Also I forced myself not to use my bed for anything but sleeping.

I overdid it at PT on Wednesday morning and suffered a wringing pain in both legs afterward. It was horrendous, because it ruined my sleep. The only things that helped were heating pads, an electric blanket and TV in my Livingroom. It has been hell dealing with RSD without pain meds. Right now I am having burning, flushing in both hands and arms, as well as in my face. I have been off the nortriptyline for 6 days so I am worried that it isn't the nortriptyline causing this, but maybe the RSD has spread.

I am investigating kratom, but I am hesitant to buy it until I know for certain it does not interact with LDN. Have you tried kratom? The many reports that it helps with pain give me hope.

Did you get a chance to watch the Wim Hof video I posted?

Wiix 08-07-2015 09:05 AM

When I can't sleep it helps if I get up for a while. That makes me sleepy. So I go back to bed, flop around for a while, get up again, go back to bed, eat something, have some tea, watch tv...eventually I do fall back to sleep and sleep all day. :( Not sleeping really messes up your life. :(

cgirl78971 08-07-2015 09:29 AM

I had that problem for a very long time! If you can ask your doctor about Ambian, I only take it when needed because it's very addicting but it helps so much! Also try Melatonin it's a natural sleep aid! I'm so sorry to hear that

RSD ME 08-07-2015 10:59 AM

thank you all so much for your kind words. i had a rough nite/morning but finally fell asleep around 6 a.m. i'm feeling a little better though. i still have pain but the flare is over so that's a relief. i hope you all have a pain free as possible day today. thank you again for caring so much. it gives me the strength to keep fighting this monster called rsd. soft hugs to all.

uglogirl 08-07-2015 12:27 PM

Quote:

Originally Posted by RSD ME (Post 1160734)
hi all. i was just wondering if anyone else was up. i have had a bad flare all nite from my rsd and can't sleep because of the pain. i'm so tired. i hope everyone else is having a better nite or i should say better morning at this point. i guess i'll try to lie down again. hope you all have a low pain day.:grouphug:

Those are the worst. What do you do to calm it down.i will walk a little, rub my feet, tak e a couple Motrin and put me feet in a bag of ice ...

RSD ME 08-07-2015 01:44 PM

when i have rsd flares uglogirl, i try to lie down, use heating pad and have a cup of chamomille tea. but nothing was helping last nite. i just had to wait for it to pass. i tried stretching a little and that helped a little. as for ice i never use it because my dr said ice was not good for rsd. it can cause further damage of the nerves. if i were you i would check with your dr before using anymore ice. thanks for all of your kind thoughts. hugs.

Wiix 08-07-2015 02:21 PM

Man! The things we mortals have to put up with! :eek: ;) :hug:


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