Chronic Pelvic Pain Syndrome, asking for advice
 

Hello my name is Bill,

I've been going through CCPS for three years. It was initiated from a very accute prostate inflammation. Three types of bacteria and a treatment of 2 months with a follow up after 2 years with a treatment of 1 month. The repetition of the same bacteria the doctor said indicates that it was a case of chronic prostatitis.

Now I know that aside that I was also suffering from what started as irritations between my thighs and became pain when I am sitting. The kind of pain that you feel like it's running a line from one spot to another. Nerve pain. I also had accute symptoms of obsessive compulsive thinking/behavior.

I did visit a mental health doctor who gave me a diagnosis of very mild OCD and helped me through it. He diagnosed tension headaches and gave me some pills I took for a couple of weeks. That was my ultimate low to the point I had to quit my job for some months and later returned. (You wouldn't believe what a great guy my boss had been when I went through this).

Bottom line is that all that has left me quite insecure with the health of my general function of my brains/ nervers; especially in the areas mostly affected. Even though my life is back to pretty much normal, mild pain and irritations in the pelvic area and numbness in the head that reslembles the headaches have not gone yet after about 7 months.

My question is do such crises permanently harm the brain to cause disabillity? Should I be trying to help myself recover from this numbness of my nerves in the head and the spine? Should I just ignore this mild pain as it is not life debilitating?

Any bits of wisdom or common experience will be appreciated.
Bill

Hi Bill,

Welcome to NeuroTalk! :D

Congrats on the measures you have taken to help yourself. :)

As for the numbness in your head and spine, you may want to get an opinion as to the cause. Having more information about the cause will help you to determine what to do next, if anything.

Please ask your primary care physician to help you with the appropriate evaluation/referrals. :)

Also, please see related forums here. Please make yourself at home here. :)

To Our Healing,
DejaVu

Hi Bill,


I had meant to offer you this link:
http://www.fmpartnership.org/article...nDysf_2012.pdf

I hope you are already feeling better.
You might be interested in this pdf

In response to Bill
 

Bill,

I'm sorry to hear what you are going through. I've been battling Chronic Pelvic Pain for 6 years now. I have discovered some things you might find interesting.

OCD with respect to chronic unresolved unrelenting pelvic pain is like what came first - the chicken or the egg. You could have had OCD prior to the onset of the pelvic pain, and you could also have sent the OCD into overdrive when the pelvic pain took over your life. These two things go hand in hand very often. What truly matters is to recognize that minimizing or eliminating OCD at this point will be helpful, but it's not a silver bullet. Don't let Doctors and shrinks make you think that. One last thing worth noting, when you go to Doctors for chronic pelvic pain and they don't end up helping you, and you go through month after month, year after year, of this hell not getting resolved, you're likely to hyper focus on how to get better, how to cope, how to function daily. The "disease" takes over your thoughts - as should be expected - my God you are living a hell and trying to survive through it - of course it will make you OCD. If the damm doctors would solve this or take it more seriously, or if the world knew about it and it was more common, the onus wouldn't be on you to deal with it alone. It's that factor than can justify becoming OCD about it. I was like this for several years. I understand.

Stress is HUGE when it comes to pelvic pain. HUGE HUGE HUGE!!! Stress makes it worse, but removing all stress does not cure it. I could win the lottery tomorrow and all my stress would disappear, but my pelvic pain will not.

Lastly, your brain has changed. When you live in chronic pain, your brain is constantly being sent pain signals. Your brain has been sent pain signals for 2 years straight now. Clearly that is not normal. Your brain is constantly interrupted by pain signals making it difficult for you concentrate, remember things, give a crap about other things, focus, etc. Yes, it messes up your head. Dr. Wise of the Stamford Protocol, who wrote "A headache in the Pelvis," repeats the same thing over and over and over again in his book. You know why? It's because he knows his readers can't focus as well because of the pain, and he must drive home the key points repeatedly.

Hope this helps.