new event, soo scared. Autonomic sfn?
 

I've felt that I've had a hard heartbeat that pulsates through my whole body for a while. However, last week I had a horrible spread of pain up into my scalp. With this horrible pain that squeezed my head and made it feel like it was being stabbed came the fast seizure like shaking in my face and throat, and back of neck. I have this over the rest of my body but these areas were spared.
Now, it's spreading down to the front of my chest. My heart feels like it is shaking fast and hard too. My pulse along with it.... I'm scared is this autonomic neuropathy? Is this what's capable of killing me?? Please share if u any info

Hello canagirl. Calm down, I personally think that this is not autonomic sfn but it is just anxiety, because I have also the ame feelings and had them before my sfn symptoms started.

I do have anxiety but don't Beleive this to be related. I've had this sensation almost body wide for 8 months ( constant, never stops). Up until now it was not in my neck , face or chest.

I feel like I'm rapidly approaching the end of my tolerance. The burning has deepened and spread, to almost everywhere now ( lower chest and upper abdomen spared for now). The burnung and stinging is so bad I feel numb. The large nerves I can feel buzz vibrate and shake. I must have turned this into central pain syndrome with all my anxiety. I'm feel like I am killing myself with all this ( I know that I am and I can't stop). No psychologist or any other doc can help. Life is torture. Despite spending hours pouring over old posts I don't see anybody improve, only worsen. This is making me evn more crazy. I'm going to ask for a long standing script of benzos. I can't do this anymore. I need to stop this insane cycle of pain, anxiety, fear etc and fear being sedated is the only way. I'll start tomorrow hopefully. Any body have advice ? I'm already so bad what does worse look like?

Out of my mind right now. Literally. Why doesn't the burning and stinging ever let up? It seems to travel and let up for most people here. Why is mine so widespread and active every second? Anybody know or can relate?

Canagirl what do the doctors say about this=

I forgot to ask you how you manage your baby with this problems :( I am so scared

Canagirl, I understand the feeling of the shaking everywhere and I've had it in my neck and head to the point I felt like I was going to have an aneurysm. It is truly a disgusting feeling.

You did not do this to yourself.
Did you have an anxiety disorder before the nerve stuff started?

Not everyone gets worse. I am not doing well right now, but I haven't completely relapsed to the hideous state that I was in. I am in a lot of pain, but the vibrating is settling again for now and I am staying calm.
Have you taken benzos before? I think if taken every day they can cause depression and agitation. IDK. Throughout the last 10 days I have been taking 1-1/2 up to 7.5 mg valium a day to stop the muscle spasms in my neck and traps and this is the longest Ive been on them for months and they make me feel kind of gross. I think they are ok a few times a week but be careful.

How far are you from a teaching hospital or a large hospital like one of the Mayo clinics? These places are often great at diagnosing and will run many tests in a few days. It is a good way to get answers without having to wait weeks or months between tests, visits etc.
When I went to the Rochester Mayo, which depending where you are in Canada, might be your closest, they ran 4 straight days of testing. It was all coordinated so I could just go from one to another.
Then you meet back with the neurologist and he will go over all of the test results with you.
They will give recommendations that you can bring back for your own Dr. and there is a pain management clinic there as well.
You don't have a diagnosis yet --right??

In Canada we don't have a mayo clinic type of hospital and I can't afford to travel to the U.S. and payout of pocket. I do have a sfn diagnosis by skin biopsy. I know the cause is from acupuncture. I should have known better but I caused this spread. I had been having pain at one if my acuouncture points ( pain for months already). I finally had enough and got my husband to massage it. Well a few hours later the pain was horrible ( base of neck upper shoulder area along spine) that's it, later that night that night the pain went up my neck into my scalp and down Into my face. The pain is throbbing along the nerve tracts, burning, stinging, squeezing and immense pressure inside the middle of my head. This spread caused the rest of my body to flare up. It's excrucuating everywhere.
I have an appiintment with the neuro this afternoon and don't know what to ask for. There is no help for me, my nerves are physically damaged from trauma. It's getting worse by the day...