Got the ball rolling here with some possible help
 

:)Yesterday I spoke with an environmental fellow pediatrician and she spent about an hour asking questions. She wants me to email all of my tests done so far and will be discussing the case with a team of doctors to see if there is any help they can offer. She said nothing is shouting out the answer based on my responses, but they will discuss and see if there are more questions or tests that could come up with answers. I am SO glad I took pics of the levido on all of us, because besides my sfn/ tilt test, there is no visible proof of how insane this is and they want to see the pictures.

Hope Hope Hope