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-   -   Research Study...if anyone is feeling altruistic (https://www.neurotalk.org/peripheral-neuropathy/224788-research-study-feeling-altruistic.html)

janieg 08-19-2015 11:10 AM

Research Study...if anyone is feeling altruistic
 
I have no interest, but thought I'd post it. There are 14 participating centers in the U.S.

https://www.foundationforpn.org/docu...nouncement.pdf

____________

Patrick Winter 08-19-2015 08:57 PM

Quote:

Originally Posted by janieg (Post 1164025)
I have no interest, but thought I'd post it. There are 14 participating centers in the U.S.

https://www.foundationforpn.org/docu...nouncement.pdf

____________

Mexiletine can kill you. Cymbalta made me wanna kill myself, Lyrica turned me into an absolute zombie. Never tried Pamelor. This isn't for me either though. :(

janieg 08-19-2015 10:29 PM

Gabapentin was the only thing I tried. Felt very spacey for about week. Was only taking 300 mg at night, and I'm not sure it was doing anything.

Patrick Winter 08-23-2015 11:45 AM

Quote:

Originally Posted by janieg (Post 1164269)
Gabapentin was the only thing I tried. Felt very spacey for about week. Was only taking 300 mg at night, and I'm not sure it was doing anything.

They all scramble up the brain signals. I have gone from a max 3600mg dose of Gabapentin down to 600. I would like to get off it completely soon. I find I can deal with the the daytime pain. When the nighttime burning kicks in I need help.

janieg 08-23-2015 12:55 PM

Quote:

Originally Posted by Patrick Winter (Post 1165245)
They all scramble up the brain signals. I have gone from a max 3600mg dose of Gabapentin down to 600. I would like to get off it completely soon. I find I can deal with the the daytime pain. When the nighttime burning kicks in I need help.

That's pretty much where I was. I just wanted "as needed" help with pain.

I know this is a long-shot, but are you involved with genetic genealogy? I was looking at my cousin's DNA matches the other day, and came across a "Patrick Winter" he matched.

Neuroproblem 08-24-2015 03:24 AM

how odd, only the 4 most common drugs for treatment i would expect some new drugs, not the old ones. It could be a marketing ploy by the pharm companies.

madisongrrl 08-24-2015 06:56 AM

Quote:

Originally Posted by Neuroproblem (Post 1165421)
how odd, only the 4 most common drugs for treatment i would expect some new drugs, not the old ones. It could be a marketing ploy by the pharm companies.

Nope. It's funded through Patient Centered Outcomes-Research Institute. They are trying to figure out which drug is best for the patient. This kind of data is very helpful for the end user.

http://www.pcori.org/funding-opportu...at-who-we-fund

Pharma generally doesn't care much about stuff like this. Now things like the recent changing of cholesterol guidelines..... Pharma gets all worked up because it significantly impacts their market share.


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