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-   -   tna fixed website (https://www.neurotalk.org/trigeminal-neuralgia/225071-tna-fixed-website.html)

Burntmarshmallow 08-25-2015 01:50 PM

tna fixed website
 
Thank You TNA now I will ask mods to remove what I have promised to remove. PEACE BMW

Burntmarshmallow 08-25-2015 02:07 PM

I have to say... only I and God know how guilty and ashamed I feel and I wish I could go back and do a better job of caring and sharing info but all I could do was fight for update and fix.. that ain't much and I really need time to rebound from this .... but I will be back :grouphug::grouphug:
Thank You again TNA for hearing me and for updating and fixing the issue. I really do mean that. Now I can use the site and it will be more helpful as a tool in support. God Bless!! PEACE BMW

Burntmarshmallow 08-25-2015 05:43 PM

Thank you for removing those threads ... now hope this forum will smooth out and all gets back to normal. I apologize for the disruption :grouphug:. Off for some rebound time. Peace BMW

BethO2L 08-27-2015 10:49 AM

No Apologies Necessary
 
I don't think you have anything to be sorry about,,,in fact,,THANK YOU,, for facing and fighting a large organization and fixing something that was completely inaccurate. We all know that most people diagnosed with TN will end up on the TNA website,,it is their responsibility to make sure that what they have on their site is as current and accurate as possible. When an inaccuracy is brought to their attention they need to face and fix it. No other options,, it is their responsibility.
Thank you again for bringing this to their attention. It was not a small minor mis-print, it was a major inaccuracy. They should have known better.

In all honesty, I have been a SGL for TNA for probably 8 years or so,,,had they not fixed this I was preparing to resign. I mostly do support work online and on the phone,,and I get a good number of calls thru them and I really didn't want to not be available to those people. But had they not fixed this I would have left. They used to be a small really helpful group of people but as they have grown and their focus has changed from just TN to Facial Pain,,they have become more like any large non profit. I still support them because they do some good work,,,

But the work you do here is priceless for the people you help,, and you have helped many,,myself included, Keep doing the work you do and keep fighting. Those of us who can must fight for those who can't......

Keep Fighting my Warrior Sister,,





Quote:

Originally Posted by Burntmarshmallow (Post 1165784)
Thank You TNA now I will ask mods to remove what I have promised to remove. PEACE BMW


Burntmarshmallow 08-28-2015 07:15 AM

Quote:

Originally Posted by BethO2L (Post 1166242)
I don't think you have anything to be sorry about,,,in fact,,THANK YOU,, for facing and fighting a large organization and fixing something that was completely inaccurate. We all know that most people diagnosed with TN will end up on the TNA website,,it is their responsibility to make sure that what they have on their site is as current and accurate as possible. When an inaccuracy is brought to their attention they need to face and fix it. No other options,, it is their responsibility.
Thank you again for bringing this to their attention. It was not a small minor mis-print, it was a major inaccuracy. They should have known better.

In all honesty, I have been a SGL for TNA for probably 8 years or so,,,had they not fixed this I was preparing to resign. I mostly do support work online and on the phone,,and I get a good number of calls thru them and I really didn't want to not be available to those people. But had they not fixed this I would have left. They used to be a small really helpful group of people but as they have grown and their focus has changed from just TN to Facial Pain,,they have become more like any large non profit. I still support them because they do some good work,,,

But the work you do here is priceless for the people you help,, and you have helped many,,myself included, Keep doing the work you do and keep fighting. Those of us who can must fight for those who can't......

Keep Fighting my Warrior Sister,,

well I am sorry that I lost a contact because after mvd came AD and now they are not alive anymore. :(and I can be sad because I do NOT like negative and drama and stuff in a forum any forum here or where ever . I dont want to be thought of as someone who spazzes out and is a meanie because I vented and I got stuck in overdrive there for a bit. I know other contacts that do what you do and they too were going to stop if site wasn't updated and polished up. I think TNA did a good job at update with disclosure at the very top and fixing of wording in MVD section. other web sites I found three other all fixed and updated without any argument or hesitation and only need that first contact from me . I am very happy TNA updated .... also to a someone .....I myself Value FRIENDSHIP much more then input unless the input is from a doctor .. Thats just me tho. I tried at least.
PEACE
BMW

DejaVu 08-28-2015 09:00 PM

(((( bmw ))))
 
Well done, BMW! :D

Thank you!

Please do take any break you feel you need. You deserve a break. It can be very stressful to take the forefront position in making changes.

You have my utmost respect and deepest admiration.

:hug:
DejaVu


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