Concussion Associations in the US?
 

Hi! I am looking for a concussion association in the US or Canada. I am boardmember of the Danish Concussion Association and would love to get in contact with other associations around the World, because together we are stronger [emoji4]

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I have been suffering from PCS since my accident on a bike in 2008. I am still not well and live a very different life than before. However I really want to help others, most concussion research and treatment is very limited in Denmark/Europe. It would be great to get in touch with other associations around the World, fighting the same PCS battle :-)

Kind regards
Charlotte
Denmark


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Brain Injury Association of Canada www.biac-aclc.ca

Brian Injury Association of America www.biausa.org

CharlottevanGils,

Welcome to NeuroTalk. As Hockey said, we have BIAUSA and BIAC.

There are also a number of other non-profit organizations such as the Sport Legacy Institute and its affiliated organizations and Brainline.org

There are also a number of for-profit entities that serve the concussion community.

What can we do to help you ? What PCS symptoms are you struggling with ?

Thanks Hockey and Mark, for the info about the non-profit organizations as well! I will look into that.

I wish to connect to advocates for PCS throughout the world. In Denmark, our Concussion Association are building online communities for Danish patient with PCS, we have just reached a 1000 members! Also we are in contact with other European countries but I would like to be able for all of us to connect and share experiences about PCS, patient, communities so on. We are all voulenteers reaching out.

I have been struggling with PCS for nearly 7 years now, in Denmark we have no treatment and only very limited research, so we do look abroad to the US for this!

Thanks so much :)


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