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-   -   Plantar fibroma and CRPS (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/225389-plantar-fibroma-crps.html)

Juliek72 09-01-2015 02:12 PM

Plantar fibroma and CRPS
 
I was just diagnosed with CRPS this week and I just discovered I have a lump in the arch of my foot. I researched it and it seems like it is plantar fibroma. Are these 2 related in any way. My surgery was done on the outside of my foot and the lump is on the inside. It hurts when touched. I go to my ortho on Friday so hopefully he can give me info on this. I'm really tired of all this.

Littlepaw 09-01-2015 04:18 PM

Julie, what the? Me too. We also have a member on the peripheral neuropathy board who has this. They are getting RT (radiation) right now. Don't worry fibroma are benign just difficult.

Did you have the fibroma before? Do you know when you got it?

My original saga started with a ruptured plantar fascia that didn't heal in one area and over healed in another with the fibroma, mid-arch like yours. My first surgery was for the torn fascia portion And was when my nerve Injury occurred.

I made the mistake of giving permission for the fibroma to be resectioned during my nerve repair. It was bugging me and they had me under. However, It grew back and I had to have it out again because mine went crazy after being cut on. Sadly, it came back a third time. I scar crazy and obviously have collagen issues!

I ended up getting two rounds of radiation which finally shrunk it. There is still a hard area but so much better.

Often these do not require treatment. If yours does, Steroid injections may get it to shrink and stop growing. If it is stable leave it alone. If it is growing find a radiation oncologist who treats dupuytrens and lederhosen. The radiation was not bad. I got it while having CRPS. My foot got a little toasty and I had to moisturize. It was the right choice for me and studies are very positive. RT for fibroma is well established in Europe. It is an option if yours gets bigger. My insurance paid every penny. Surgical outcomes are very iffy in the literature.

Are the conditions related? I can't say. But I do know that we have a billion sympathetic fibers in the soles of our feet.
There is a website called Dupuytrens International which is quite helpful and has a forum and doctor info.

I feel for you girl. PM me anytime if you have questions. Sorry for the long post. so much to cram in...
:hug:


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