New here and a problem
 

Hello Everyone. I just was googling a solution for my Problem and bumped into this Forum..

I know it is maybe not possible for anyont to help me, since the doctors have been experimenting on me for almost two years and I still have pain..

It started in December 2008 my first umbelical hernia cirgury. Then again in January 2010.
Then in January 2014 I started experiencing some pain in the same area and they decided to operate me again to see if they could find anything, since the exams were not showing anyhting.

After the cirgury I had more pain then before.

Went to hundreds of doctors None found a reason for it. And even told me I had to live with this pain for my life "maybe you're lucky and before you are old it goes away..." they said.

I didn't give up and went to a clinic specialized in chronic pain. They tried giving me electric Stimulation and it only hurt, but helped nothing.

Then they went to Phenol. Which they have been giving me since February 2015. So far it has made my belly numb, but I still have pain on my belly button. and it was better more to the right side, but after a while is coming again....

And the left side it just didn't do anything...

I don't know what shall I do next... I have had enough of Phenol injections. They told me my only Option left was a recent cirurgy where they introduce a Gadget on my hip to block the message from pain to go into my brain.

there is only existing for two years, so I don't know much about it and will it really help, since anything else did?

And besides I want to have a second child and I don't want an outside Body on my Body... before I conceive...

and would it be worse if I get preagnant?

Can anyone help me please? I am quite desperate... I cannot live my life properly since everytime I move is attached to our belly muscles... and it really hurts...

Thank you and I am sorry to bother you all!

Hi and Welcome,

I am so sorry you are in such pain and have had such a long journey without answers or relief.

IMHO you are not totally out of options. It would be great if the source of your pain could be located. Sometimes nerves can get caught up in scar tissue after surgeries or perhaps the pain signals got turned on and never shut off. Peripheral nerve specialists can sometimes indentify the problem, the doctors with this training are usually plastics and reconstructive surgeons.

Also in some cases a nerve ablation can be helpful. I know someone personally who had pelvic nerve pain for several years who got their life back this way. If they can locate the source of pain through testing with a local anesthetic you might get an idea if that would help. There is also the option of trying something like ketamine infusions for chronic pain before going to the spinal cord stimulator.

Hang in there and be kind to yourself. I hope you find relief soon! :hug:

Hello Cppimenta,

Welcome to the NeuroTalk Support Groups! :Wave-Hello:

I'm sorry that you're still in so much pain but I hope you are able to look at all the options before you make a decision.

You also post on the links below.
Chronic Pain Forum

SCS & Pain Pumps Forum

take care

Great to meet you!!
 

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene