NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   Too much Mestinon? (https://www.neurotalk.org/myasthenia-gravis/225565-mestinon.html)

FREDH 09-04-2015 04:39 PM

Too much Mestinon?
 
I recently had my Nuro change my Mestinon to 6 - 60mg per day. I am no better than the 5 I was on. I can't help but wonder if I'm getting too much. Seems like my symptoms have become worse.
Is it possible that my MG has gone to remission a bit, and I'm taking even more. Originally I started at 3 x 60 per day. I did great. I see my Nuro in 3 weeks, and will bring this up for sure.
If anyone has any input, it would sure be nice.
FREDH

jvaagen 09-04-2015 08:57 PM

Quote:

Originally Posted by FREDH (Post 1168639)
I recently had my Nuro change my Mestinon to 6 - 60mg per day. I am no better than the 5 I was on. I can't help but wonder if I'm getting too much. Seems like my symptoms have become worse.
Is it possible that my MG has gone to remission a bit, and I'm taking even more. Originally I started at 3 x 60 per day. I did great. I see my Nuro in 3 weeks, and will bring this up for sure.
If anyone has any input, it would sure be nice.
FREDH

My original nuro put me on 3 -60mg mestinon 2.times a day. That was 10 years ago and now if I take the whole 180mg I get SEVERE stomach cramps, EXPLOSIVE diarrhea, EXTREME dizzyness to the poin t of passing out. I've dropped it to 135mg 2times a day and that works good for me.

FREDH 09-07-2015 09:07 AM

jvaagen
 
Quote:

Originally Posted by jvaagen (Post 1168691)
My original nuro put me on 3 -60mg mestinon 2.times a day. That was 10 years ago and now if I take the whole 180mg I get SEVERE stomach cramps, EXPLOSIVE diarrhea, EXTREME dizzyness to the poin t of passing out. I've dropped it to 135mg 2times a day and that works good for me.

I'm finding that the dose really varies from person to person. I originally thought you had to be really careful about overdose. Apparently not so.
Thanks FREDH

jvaagen 09-07-2015 04:53 PM

Well yes body types, disease severity, symptom severity. Each person medication requirements will vary widely.


All times are GMT -5. The time now is 08:27 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.