Drs not much help
 

I was wondering how you all get pain meds or sleep aids. NONE of my drs seem to want to gv me anything like that. I have tried all of them. Nothing yet. I can never sleep more than 1 or2 hrs at a time and feel if I could get some quality sleep I would feel some better. No pain meds at all as they say they don't work w this. My MVD surg is next Fri and my fear is that I will wake up even more pain. And that it may not work. What is it with these Drs and why won't they try something for me> I just dont' get it. I had back surgery a few yrs ago. For 3 yrs I was on hydros and even pain patches. I had no problem after the surgery and had no withdrawals stopping these meds. When you go to a Dr you expect them to try something. Even the meds for this TN have been like pulling teeth. I needed a refill on Tegretol and it took them almost 3 wks to get back t me. ??? I have only had that and Trilleptal. Neither has workd very well and the Tegretol is making my hands numb and jerky. How long after this surgery wil I have to take this awful med? :eek:

Sorry Moose, but pain meds do not work at all for TN, only some ADs or, usually, anti seizure meds are used to have any effect, and they come with a host of side effects. I have to rely on the Topiramate (Topamax) that I take to reduce Cluster Headaches to reduce the severity of TN and Neuropathic Facial Pain Attacks.

I do think you should feel comfortable about surgery before proceeding. Are you sure you have tried every med?

Dave.

Moose sending good energy and will be praying that your procedure goes smooth and is successful . I am sorry you have to go it alone after 3 days. Do you have any neighbors that could check on you and help a tiny bit? One of my friends did the whole MVD on her own by herself well I mean the neuro did the Mvd ... but she went threw it all by herself..including taking taxi to and from the hospital. Its not the easiest or fun to have to do but sometimes there is no choice. I replied to your post on the MVD diary thread.... I hope you emailed Ella. I want to let you know we are all here praying, thinking of you, and wish for your MVD to be successful . Also hope the recovery time is short and your back on your feet pain free and enjoying life once again in a timely manner with no set backs. Please keep us updated . :grouphug: PEACE BMW

You are not lost but just finding your way
 

NOT ALL OF THE DR.S UNDERSTAND WHAT TRIGEMINAL NEURALGIA
REALLY IS. I HAVE BEEN IN THE EMERGENCY ROOM AND THE DR. ASK ME IF HE COULD HAVE THE INFORMATION PHAMPLET WHEN HE SAW THAT WE HAD ONE WITH US. THEY GAVE ME A SHOT OF DEMERAL AND I WENT HOME AND PUKED MY GUTS OUT. MY HUSBAND TOOK ME TO ROCHESTER MICH.
TO FIND THE NEUROLOGIST 'S THAT SPECIALTY WAS IN THAT FIELD,
MAYO CLINIC. i WAS IN THERE FOR THREE WKS. I WISH YOU THE BEST
AND BE SURE THAT YOUR DR.S, OR NEUROLOGIST KNOW AS MUCH OR MORE THAN YOU. SOMETIMES IT FEELS LIKE BEING LOST BUT YOU ARE NOT.
REMEMBER THAT! IT TAKES SOME TIME BUT YOU WILL GET THERE
WISHES, DOODLE BUG7

Sorry, but rochester minn. Is not in mich. As i previously wrote.