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-   -   Optic Neurotis anyone? (https://www.neurotalk.org/peripheral-neuropathy/226099-optic-neurotis.html)

MAT52 09-16-2015 05:21 PM

Optic Neurotis anyone?
 
Yesterday my optician found, to his surprise, that I have an optic neuritis on one eye. Fortunately it's not in the macular region so hasn't affected my vision so far. Anyone else with parasthesia as part of an autoimmune disease have this?

franklin76 09-16-2015 07:09 PM

Quote:

Originally Posted by MAT52 (Post 1171415)
Yesterday my optician found, to his surprise, that I have an optic neuritis on one eye. Fortunately it's not in the macular region so hasn't affected my vision so far. Anyone else with parasthesia as part of an autoimmune disease have this?

Ugggh - I am so sorry. Am fearful of the same and I have already been having these weird pangs in my eyes and I am scared that it may be starting for me as well. Mats what advice did they have for you? Did they think steroids or IVIG or other suppressants would help curb progression? Hang in there...

MAT52 09-17-2015 12:53 AM

Quote:

Originally Posted by franklin76 (Post 1171432)
Ugggh - I am so sorry. Am fearful of the same and I have already been having these weird pangs in my eyes and I am scared that it may be starting for me as well. Mats what advice did they have for you? Did they think steroids or IVIG or other suppressants would help curb progression? Hang in there...

Thanks Franklin76. The thing is he was just an optician looking at photos of my eyeballs on a computer screen. Because it is on the edge of the eyeball not on the macular parof my eye it won't affect my eyesight. He said it was more of a sign that something is wrong such as diabetes (I don't have this) or high blood pressure.

He said it wasn't anything to panic about but he would write to my new GP (PC) and copy me in by email. So it's really only now I've had a few days to research the implications that I've got a bit worried. Especially as my BP is always pretty high these days. I am back in my old home just now packing up and clearing our house ready to sell or let.

I don't know whether it's something rheumatic or neurological or just one of those things that occurs by itself. I think it's the same eye that gets the numbness and parasthesia but not absolutely sure which eye it's on! I didn't ask about treatment or whether it might progress or not. That's why I came here to ask for more information if anyone else with small fiber neuropathy (that isn't!) has this? I'm currently only on a low dose of Prednisolone and my joints are fine the main symptom is still the burning pain in my peripheries - ankles and feet worst of all.

Neuroproblem 09-17-2015 03:40 AM

Quote:

Originally Posted by MAT52 (Post 1171487)
Thanks Franklin76. The thing is he was just an optician looking at photos of my eyeballs on a computer screen. Because it is on the edge of the eyeball not on the macular parof my eye it won't affect my eyesight. He said it was more of a sign that something is wrong such as diabetes (I don't have this) or high blood pressure.

He said it wasn't anything to panic about but he would write to my new GP (PC) and copy me in by email. So it's really only now I've had a few days to research the implications that I've got a bit worried. Especially as my BP is always pretty high these days. I am back in my old home just now packing up and clearing our house ready to sell or let.

I don't know whether it's something rheumatic or neurological or just one of those things that occurs by itself. I think it's the same eye that gets the numbness and parasthesia but not absolutely sure which eye it's on! I didn't ask about treatment or whether it might progress or not. That's why I came here to ask for more information if anyone else with small fiber neuropathy (that isn't!) has this? I'm currently only on a low dose of Prednisolone and my joints are fine the main symptom is still the burning pain in my peripheries - ankles and feet worst of all.

you might want to confirm with an opthamologist about the neuritis, to see if there is anything going on. ON is one of the ms symptoms.

mrsD 09-17-2015 03:51 AM

Optic neuritis is also a sign of low B12 levels.

Have you had the DNA testing for methylation errors?

If you are not taking methylB12... you could not be activating the B12 you consume in foods or if you use supplements with cyano form.


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