Amino acid protocol Dr. Marty Hinz
 

My father(63y.o.) has had Parkinson's for over a decade. I am his son and his main caregiver. He has been on Carbidopa/levodopa for 5+ years. Initially, the drugs aided him to walk and function completely normal with no signs of any Parkinson's symptoms. However, within the last 2 years his symptoms started to become visible and within the last year, he has become almost fully immobile. It has been hard on him and especially me to see him loose most of his independence. My dad has always feared prescription drugs in fear of side affects. He recently read an article about an Amino acid protocol treatment by Dr. Marty Hinz and he was able to find a local doctor trained in the protocol which she guarantees can 100% successfully treat him. I was highly skeptical of her claims, but after doing research it seems promising. I would like to get some opinions from anybody here who has been on the protocol with success or failure. Any tips on other successful methods to ease symptoms would be helpful too.

Thank you

Give it a try Jeff. If thats what your father and you want.

doesn't this MD have patients you can talk to that are successfully benefitting from the hinz treatment? if you can't meet and talk to other pd'ers getting relief from this treatment that would be a red flag to me. the hinz protocol isn't cheap, the few users on this board recently complained about price increases if i remember correctly.

there are lots of treatment options between only carbidopa/levodopa and a very expensive, non-independently verified amino acid treatment. how much C/L is he presently taking and what else has he tried? i can't imagine any neurologist just trying C/L when someone is immobile.

Jeff there are many people who are successfully using the Hinz protocol. I believe there are some who have been using as long as 8 years. When it works it works well. It does take some time and a little bit of tweaking to get the right dose. It may cost more than conventional drugs. I'm sure we both agree your fathers worth it.

Make sure your MD has a good amount of experience treating people with this protocol.

desperate people often do desperate things and waste a lot of money. there have been no independent trials testing this procedure. the argument is there's no money for the trials, it's all natural ingredients so you can't get patent protection.

but ask yourself, if this procedure consistantly works better than C/L, why are you asking about it on a message board where there's no way to prove the responder has pd much less is getting a benefit? and did they ever even try C/L?

With the internet and social media making it impossible to hide a better alt-med treatment than C/L, the ease of crowdsourcing to fund startups and considering the high price charged for the amino acids used here, it should be easy to fund a trial. if i had someone stand up that i had known for years and trusted at a pd support group meeting and say, i've had great success with the hinz treatment, anyone want to join a trial, i'd consider it. but that's never happened.


finally, who's to say they aren't adding C/L to their supplements? just playing devil's advocate.

Jeff I'm glad your keeping an open mind about this. You may want to talk to Dr. Hinz directly.

Thank you all for your input. My dad is going to start on the protocol next week. I'll keep you guys updated with the results...

The treatment is very expensive and I have my doubts but hope it will be worth it.

I personally am on this protocol for the treatment of concussion related issues. my case is rather complex with multiple areas of the brain being affected, thus it has taken us awhile to narrow in on the correct dosage needed for alleviation of my symptoms. What I can say though is that I have thoroughly done my research on this protocol and from everything I have read, this to me looks like one of the most profound medical discoveries as of recent history. They have 19 peer-reviewed medical papers that outline their findings as well as being both Cma and ama certified. I cannot say for 100% certainty that it works simply because I have not had to work for me yet, but I do believe to a 99% rate that it is legitimate. And if what they are proposing is correct then we are looking at not only the complete management and resolution of parkinsons disease, but any neurotransmitter related disease. As seen on their website at https://neurosupport.files.wordpress...lticolored.jpg. This is huge.

I will leave a few links to a few of their papers that are focused on parkinsons disease that you may be interested in reading. I would highly suggest following through with doing this protocol, I very much believe that you will find great success and results in doing so. make sure you stick with it and dont give up on it even if it takes multiple months for it to work. Id appreciate if you could report back with how it works for your father in a few months if possible. I wish you well.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3068871/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4211847/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4238750/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4266417/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4113308/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3355850/

just curious, you don't have parkinsons's, you never posted here before, how did this thread come to your attention?
i'm only going to say peer reviewed is not the same as scientifically proven. you rarely see a drug study done by the company done by the company making the drug as was the case in all these studies. most of the articles aren't actual "trials" but opinion pieces.

i admittedly didn't study these papers, just glanced at them. i found this excerpt hard to believe, general concensus is anything over 250/mg per dose is not going to add anything yet this patient is getting over 10,000mg?

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4113308/
"Changing the daily L-dopa dosing value by 120 mg can have dramatic clinical results. In general, this is independent of the size of the daily L-dopa dose. For example, a patient was taking 10,800 mg of L-dopa per day (equivalent to 90, 120 mg L-dopa pills) in the competitive inhibition state. The patient reported being frozen in the chair and unable to stand. After a pill stop the patient was placed on 89 pills per day (10,680 mg of L-dopa). After a daily decrease in the L-dopa dosing value of only 120 mg, the patient was able to rise without assistance and ambulate. These results are common, not rare."

Great Jeff, stick to it and don't give up too easy.

I usually only post on the TBI/post-concussion forum, but i regularly check other forums when bored, so I happened to stumble upon this thread and thought I could offer a little insight into it.

What they found in regards to the drastic effect of only changing the amounts of L-dopa by 120 g is that both taking too high of levels of L-dopa and too low of levels of L-dopa shows the same clinical symptoms. By reaching the absolute correct levels needed by the system for function to be restored is when symptomatic alleviation occurs.

They are able to get to such high levels of L-dopa because they are able to eliminate all side effects that are normally associated with the intake of L-dopa. Normally you reach a dosing barrier level when taking L-dopa by itself or with Carbidopa which then leads you to not being able to increase the levels. The issue with this is lets say you are only able to get 3000 mg of L-dopa before the side effects become intolerable. You are still left with many symptoms of parkinsons disease but you are unable to get the the levels of L-dopa needed because of the inability to raise the levels of L-dopa due to side effects. They have found you can manage and eliminate all the side effects associated with the intake of L-dopa by correctly balancing the levels of intake of L-dopa, 5-htp, L-Tyrosine, and L-Cysteine. The side effects of L-dopa intake is an imbalance in dopamine and serotonin in the competitive inhibition state. By giving correct levels of 5-htp you are able to get to the dosage needed by the system for symptomatic alleviation.

Bravo Jeff !!!
I hope you get positive results !!
kind regards

CTjeff,

Welcome to the forum.

I'm not a doctor, so take this post as you will.

If I understand your post correctly:
- your father went 5 years without levodopa. Was he on some other medication?
- your father went 3 years with levodopa, with no sign of Parkinson's symptoms. What dose was he on?
- over 2 years he has become immobile. Did your father's doctor try increasing his dose of levodopa during this time?

Some deterioration with time is to be expected, but I'm surprised by the large change in the rate of progression.

In my opinion, this suggests that your father had slowly progressing PD for the first 8 years and has had a much faster progressing "something" for the last 2 years. Has vascular PD and depression been discounted?

Have you discussed this with your father's doctor? It could be something other than IPD.

John

Jeff said in his original post.

"He has been on Carbidopa/levodopa for 5+ years"

"within the last 2 years his symptoms started to become visible and within the last year, he has become almost fully immobile"

regardless, i like john think it' s odd that this poster can only say his father is immobile and he wants to go from C/L to a very expensive, unproven treatment. that seems somewhat unfair to his father. there are other options. so maybe he is leaving out some details.

who in the world can take 89 pills? they can't be serious.

I will give more history on my father to help clear up any confusion. However in his initial diagnosis I was only 13 years old and my father was fairly secretive of his condition in the beginning.

My dad was an avid bicyclist. He rhode daily. Which I believe helped enable him to stay off Parkinson's drugs for the first 5 years. He was also paranoid of prescription drugs in fear of dangerous side affects. Which is why he tried to avoid taking c/l for so long. It took him dozens of falls until he finally gave in and resorted to medication. I'm unsure of his initial doesages, however his current dose is stalevo 150 4 times daily and Azilect 1mg 3 times daily. He has tried other drugs, sinemet, rytary etc but none have any effect on him. He is scared of dbs and prefers a more natural treatment, hence the amino acid protocol.

Immobile might have been the wrong word choice. Usually when hes on his "on" time he can move around but cannot walk without assistance. His off time is an immobile state. I have to carry him to the bathroom, dress him etc. however it is 100% unpredictable and sometimes the dose has no effect at all, sometimes it works better and he can walk on his own.

It is true, these past 2 years he has had a rapid decline in his condition. He is depressed, but I think I am more depressed than him. he was extremely active, hiking, biking, running, swimming, to being wheelchair bound this past year has been tough on me to watch as his caregiver and his son.

I will update as my dad goes through the treatment. Thanks for everyone's insight and help.

your dad is at half the maximum strength of stalevo. has he tried higher doses or added in plain C/L?
https://www.pharma.us.novartis.com/p...df/stalevo.pdf
are you sure about 3mg of azilect? i've never seen anyone taking more than 1mg except in a clinical trial and that was 2mg and it was no more effective than 1mg, 3mg might be dangerous, plus incredibly expensive. if this is true i'd talk to his neuro asap.
C/L should have an affect on him if stalevo works, it's C/L with 1 more ingredient which inactivates an enzyme which breaks down the levodopa in peripheral tissue and the brain and allows more l-dopa to reach the brain. stalevo just gives you more on time so you can take it less frequently.
your're his caregiver, i'd try to find a 2nd opinion and the best MDS you can find. if you try the HINZ protocol hope you have the next step planned if it turns out to be an expensive failure. i tried some wild procedures like chelation therapy, didn't help and the mantra was always, "give it more time" as i paid $125/week for infusions.

Best of luck to you Jeff, I'm sure your Dad is proud of you. Let us know how the therapy goes.

I apologize, it is 1mg of mirapex 3x/day.

He already has mild dyskinesia while on stalevo and upping the dosage aggravates it.

Unfortunately his Dr. Is already preparing us with the mantra, "should take ~3months to see results".

He has a consultation with Stanford in November. Hopefully they have some new research or trials going on.

so he's been on azilect?
how long on mirapex? 3mg is the lowest effective dose.

parknson's clinical trials are at https://foxtrialfinder.michaeljfox.o...vid=footer-ftf

He was on azilect for about 2 years but didn't notice any benefit so he decided to discontinue taking it.

On mirapex for 5 years. Originally he had been taking mirapex 1mg 4x a day. But a new dr. Recommended lowering the dose to 3x/day.

Day 1 of the protocol. His regimen is as follows:
D5 Macuna 6 pills 4x/day
NeuroReplete 1 pill 2x/day
CysReplete 3pills 2x/day
B6 100mg 2 pills 3x/day

Jeff your using the wrong form of B-6. You need p - 5 - p. 100 mg total per dose. Two of these: http://www.amazon.com/Country-Life-P...keywords=p+5+p

Since you asked
 

I have taken the Hinz protocol for a few years with considerable success. I have never taken any prescription drugs. The disadvantages are high cost and the inconvenience of weighing and mixing powders several times a day. I currently take 34.5 g of Mucuna (40% levodopa) daily plus 45 g of tyrosine.

I also take l-cysteine, B6 (400 mg a day) and 5-HTP.

Gerry,

You write:

"I currently take 34.5 g of Mucuna (40% levodopa) daily plus 45 g of tyrosine."

That's approximately 14g of levodopa per day, plus whatever may come from the tyrosine. This compares with for most people on C/L of under 1g (= 1000mg) per day.

I think it would be really useful to everyone if we understood why these numbers are so different.

For a start, you don't take carbidopa. Wikipedia states that [1]:

"Carbidopa reduces the amount of levodopa required to produce a given response by about 75% ..."

That reduces the comparable level from 14g to approximately 3g.

Are there any other corrections to make?

How do you avoid nausea with these amounts of levodopa?

Reference:

[1] https://en.wikipedia.org/wiki/Carbidopa

John

The doctors who have pioneered the protocol Gerry is on have a paper where they give the reasoning and mechanisms for how the nausea is controlled through administration of 5-htp instead of using Carbidopa. They also discuss other negative affects of Carbidopa and why it is not necessary for the use of treating parkinsons when using 5-htp, which allows for avoidance of side effects.

Here is an excerpt from the paper that may be of assistance in understanding how Carbidopa and 5-htp work.

"Through irreversible inhibition of AADC, carbidopa or benserazide compromises peripheral synthesis of serotonin and dopamine. This drug-induced inhibition of peripheral metabolism of l-dopa by AADC leaves more l-dopa unmetabolized and available to freely cross the blood–brain barrier into the central nervous system. As a result, when carbidopa or benserazide is administered, lower l-dopa daily intake values are required to achieve the same central nervous system results.4,6

It is documented that 5-HTP controls l-dopa-induced nausea, utilizing the same basic chemical mechanism as carbidopa and benserazide: AADC inhibition. Carbidopa and benserazide inhibition is irreversible while 5-HTP inhibition is reversible. The use of 5-HTP is superior, since under proper administration it is a nutrient that does not deplete systems or induce abnormal system functions when properly administered.1,7,35–37

If the goal of administering 5-HTP for the control of l-dopa-induced nausea is to have it function as a nutrient, this is not merely a simple substitution. It requires concomitant administration of l-dopa with 5-HTP, along with the “core nutrients”: l-tyrosine, a thiol (l-cysteine, glutathione, S-adenosyl methionine, or l-methionine), and cofactors (vitamin C, vitamin B6, and calcium carbonate). Administration of properly balanced core nutrients needs to be guided by organic cation-transporter type 2 functional status analysis, in order to achieve a balance that does not convert the nutrients into a drug."

Here is the paper - http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4238750/

noone knows for sure what is in this particular mucana powder, much less how much l-dopa. one reason they might not put CARBIDOPA in it is that it would require a doctor's prescription and it's a relatively cheap drug. always the skeptic.

this whole discussion is ridiculous to me, a newbie posts on this board asking advice on a treatment almost nobody who posts on this board uses, GARRYW says he uses this treatment but has never tried carbidopa/levodopa so can't make a comparison, and then we have billbobby who doesn't have pd just happens to find this thread and is hyping the treatment and just reposts what's on the mfg's website. it's all taking place in a virtual reality. anyone can say this stuff works great but how do you prove it? honestly, for all the years this stuff has been on the market why is it still such a mystery if it was heads and shoulders better than C/L?

keep in mind that the brain only needs a tiny amount of l-dopa and if you take 100mg of l-dopa orally, less than 5mg actually gets into the brain. that's why you need to take such tiny amounts of agonists compared to l-dopa since almost all of it is available to the brain. 12mg of neupro is good for a day. so to me at least, i don't believe this mucana is 40% l-dopa.

Day 3 update.

The protocol does give relief of symptoms but only for 1-1.5hr max. Then the off effects seem to be worse than when on stalevo.

After alerting his Dr. She recommended him to up the intake of Mucuna d5 to 8 pills per dose. However still the effectiveness has only increased about half an hour to an hr.

On the second day he started developing dyskinesia in his legs which has been very uncomfortable for him. We left a message with his Dr. About this new condition.

So far this protocol has been very difficult for him but is hoping things will turn around when he gets the regimen dialed in.

So you are essentially saying that Im some shill trying to get others to invest in this treatment by hyping it up? The reasoning that Im posting in this thread and reposting what they have shown in peer-reviewed scientific papers is that if they are correct then that means they are able to successfully treat parkinsons disease while managing all the side effects normally associated with taking L-dopa and having no or slowed disease progression. It would be the best possible treatment for managing parkinsons. They have shown that a large portion of disease progression is not associated with direct progression of parkinsons itself but rather improper use of L-dopa/Carbidopa leading to a further relative nutritional deficiency of the following

”L-dopa may induce depletions of serotonin, thiols, l-tyrosine, and l-tryptophan, resulting in RNDs.”

”Carbidopa may induce depletions of peripheral serotonin, dopamine, norepinephrine, and epinephrine, along with system-wide depletion of niacin and vitamin B6, resulting in multiple system RNDs. Over 300 enzymes and proteins require vitamin B6 for normal function.”

All I am trying to do is post EVIDENCE for why it very possibily could work to try to show the fact that there is substantial evidence in support of the validity of this research/protocol.

I have known about their research for over a year now but only recently started on the protocol myself(for concussions) because I wanted to thoroughly understand how this works before investing in it. After thoroughly doing the research on it, I have came to understand what they have actually discovered and the significance behind it. They are able to treat any neurotransmitter related disease at a essentially 100% success rate(there are a few disease states that are more difficult to manage and take longer to correct). Diseases can be seen here - https://neurosupport.files.wordpress...lticolored.jpg

please, before ridiculing what I am saying on here, look into the science and the evidence for that science that they have published before immediately disregarding it as not correct. I can understand and respect skepticism but only if you have looked at both sides of the fence before presenting disbelief for what I am presenting. So please read their 19 studies on what they are doing before disregarding it.

In regards to a few of your statements.

The reason they dont use Carbidopa is this - ”The mechanism of action of the carbidopa and benserazide causes irreversible binding and inactivation of vitamin B6 throughout the body. The consequences of this action are enormous, interfering with over 300 enzyme and protein functions.”

So why use Carbidopa when they have discovered that 5-htp is able to do the exact same function as Carbidopa, while being far more effective, not causing inactivation of vit. B6, and not causing further deletion of neurotransmitters/thiols/co-factors.

In regards to how it is still a mystery is that it has not been on the market for that long. They have only really narrowed in on how to correctly treat parkinsons disease over the last 5 years. Also, how is it supposed to get known if everyone has the same reaction to it as you do? If everyone says well how does everyone not know about it if it is better and disregard it because of that, then there is no one in the first place to try it to say that it works.

For it to get known, people have to look at the science, understand it, and think beyond what they currently know regarding these diseases. What they have shown may go against what your current knowledge allows for, but the fact of the matter is that it works. And it works far better than anything currently available because it is correcting the problem, not creating more.

Sources - http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4238750/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4211847/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3068871/

The average time for how long it takes for a parkinsons patient to get narrowed in on the levels of the nutrients for symptomatic alleviation, as I have read in their studies/website, is around 3-6 months. So understand that it will take a while and at first while transferring from the meds to the amino acids side effects are rather pronounced while the transfer takes place.

”Novel observations reporting a group of 17 Parkinson’s disease patients led to identification of carbidopa-induced dyskinesias, which had not been documented prior to 2012.1 These patients had been ingesting prescribed concomitant l-dopa/carbidopa preparations for 1–7 years. Their drugs were continued as the core nutrients were started. The mean daily dosing value of l-dopa/carbidopa was 1,000 mg and 250 mg, respectively, at the initiation of the core nutrients. The mean duration of previous drug treatment was 3 years, 7 months. Onset of dyskinesias began within the first week of treatment when the core nutrients were added. Dyskinesias were generally described as facial twitching and head bobbing due to peripheral muscle-control problems within the neck and upper shoulders. When dyskinesias developed, the l-dopa/carbidopa was immediately discontinued and the nutritionally sourced l-dopa increased fivefold to compensate for the loss of the carbidopa effect on the central nervous system by blocking peripheral conversion of l-dopa to dopamine. This conversion to higher-dose l-dopa was monitored using the previously published pill-stop technique.37 Following this protocol, all patients achieved full resolution of dyskinesias within 4 days. This led to the hypothesis that the dyskinesias that resolved after applying the new protocol had been induced by the carbidopa and were not related to the l-dopa. There were no refractory dyskinesias experienced.”

Source - http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4238750/

Some posting on this thread are in the stone ages. Are so close minded that they will never learn. Sometimes makes we wonder if they work for the drug companies.

why beat around the bush badboy, your're talking about me. considering i've tried iv. glutathione, low dose naltrexone, chelation therapy, and just about every supplement mentioned on this board including mucana it's pretty ridiculous saying i might work for a drug company, especially since i've been critical of the high costs of new pd drugs on this board and have stated many times i'm only taking C/L, noone is making a fortune on selling generic C/L.

If you want to have a rational discussion about the HINZ protocol and discuss the scientific merits of the papers of the papers presented by those making likely millions from selling their supplements i'll gladly participate. i'll start by saying these papers are written by people with a financial stake in this treatment and no independent researcher has ever duplicated their results. so you expect anyone to accept their findings without some reservations?

Everyone on this board is anonymous, there is noone verifying if a poster is being honest or dishonest, has pd or doesn't have pd, is working for a drug/supplement company or not. What I saw here was a newbie asking for advice on an unproven pd treatment, backed up by studies conducted by those with a vested interest on selling this treatment and none by independent researchers, which at least to me makes this research highly suspicious, a non-pder just by chance shows up on this board and starts hyping this treatment yet doesn't know anyone with pd who has used it much less has benefitted from it. The newbie starts the procedure and gets support from this non-pder who as far as i know knows noone who has pd. And you wonder why i'm just a little skeptical about motives here?

To repeat, if you want to debate each paper mentioned here and all the claims about the HINZ protocol, i'm more than willing. The purpose the this board i hope is not to blindly accept as fact everything posted here, especially when a treatment costs as much and is difficult to follow as the HINZ protocol, as controversial and when other members posts about the HINZ treatment complaining about the significant price increases in 40% MUCANA.
I find it just a little interesting that their treatment requires you buy this MUCANA from them, hey, isn't that something drug companies do? And jack up the prices?

I posted on this thread not because i have a knee jerk reaction against alternative treatments, i have a knee jerk reaction about some poor pd'er possibly getting ripped off and ending up worse.

I'll pass.

CTJEFF, i suggest you read this thread on HINZ
 

http://neurotalk.psychcentral.com/sh...highlight=walk
excerpts

Gerry would you mind giving us an update on how you are doing on the Hinz Protocol. I find it very interesting and wanted to see if your still having the same results as last year and if the supplement routine is able to be followed over a long period of time. Do you ever miss a dose and what happened. Thanks in advance
09-10-2013 badboy99

---------------------

09-11-2013, 09:15 AM GerryW

I still follow the Hinz protocol and I don’t miss doses. In over a year I still haven’t found the combination of doses that moves me into phase 3 (see the recently posted link to http://healthyselfnow.com/parkinsonstx.php for an explanation of this.) Partly this is because the doctor (DC) I work with is a sort of intermediary between Dr. Hinz and myself. He has to contact Dr. Hinz for advice and instructions so there is always a considerable wait for results and dosing changes. Dr. Hinz said this last dosage change should finally move it and the urinary dopamine in phase 1 finally dropped quite a bit so that’s good. I have another consultation today so we shall see.

In the meantime, despite this, it works great with no side effects. I am looking for the dose that stops progression and makes the doses last longer. I have to mix my powders every 3 hours from 9 to 6. That can be a hassle if you are out and about. Also eating seems to delay or prevent it from kicking in sometimes so I get to walk or eat but often not both. I am still trying to figure a way around this.

There are some interesting effects. The regimen seems to stop all motor and many non-motor symptoms when I am on (tremor, anxiety, constipation, etc.) but they return when a dose wears off. When on I am effectively normal and I can easily con myself into believing I am cured! As for how I am different in the off state from when I started. I used to have balance issues, dystonias, bradykinesia, gagging problems, and walking problems. All are now gone except for the walking problems which are worse. My legs never had rigidity, more like the power cord was unplugged. Now when the power is off it’s really off and I need a walker.

I am hoping that when I get to phase 3 that issue will be taken care of.

I still think the Hinz program is marvelous. It’s not for everyone. It is expensive, it is a hassle to use the blender or shake the suspension vigorously (I use almond milk or orange juice) every 3 hours, and it takes time to find the right balance of aminos. On the plus side it does the job without side effects.
------------------------------

TrishaPDX 09-11-2013, 11:29 AM
That's good to know, and I'm glad you are doing well, Gerry.

My friend Jan's two year experience with the Hinz protocol allowed her to go off of Sinemet once the drug stopped working for her, allowed periods of regeneration and cognitive return-to-selfhood.

The Hinz test is expense as any test, so you only test when things aren't working. Then, the lag time between Hinz method of testing and dosage adjustment was frustrating; it could take up to 3 or 4 weeks after the urine sample was taken for results and a new prescription. The scene had shifted on its own by then an the point of reference, e.g. the terrain that had been tested, was different. So, we learned by trial and error to use other methods of adjusting dosage that involve neuro-muscular feedback.

While I am not advising anyone to bushwack against their doctor's orders, please know that we did this with her physician's foreknowledge and permission. Jan would use kinesiology or ART testing or MORA machine feedback to identify how much and when each daily dose should be taken, to optimize uptake and minimize dyskinesia. Remarkably, this helped traverse the 3 or 4 weeks until the lab results and new Hinz opinion came in. Often, we found convergence, same dosage directions. Just sayin'.

The above is not to imply that Hinz or other's properly trained are not essential!!! Only a life story on how tricky it is to balance neurotransmitters this way, that we felt the system is not fully developed to address immediate need for dosage adjustment and we got by as described above.

The part that didn't work is that, in Jan's two year's on the Hinz protocol, she kept seeming to need greater and greater quantities of mucuna for those desired on periods. She took so much that she revved her system up, the adrenaline part, and eventually the dyskinesa problems that drove her off Sinemet manifested and then drove her off mucuna/aminos. Had the cost of the Hinz protocol not been prohibitive and had we gained more confidence that a therapeutic balance could be achieve, Jan would have elected to remain on them. Nourishing the brain still makes sense to us.

So, is there a moral? Find additional ways to read your symptoms. Have unlimited funds to help find your way. Don't take too much of anything. Um...

Gerry, all good wishes! I laud your efforts and am glad to see you doing well. We'll keep learning from you.

Trisha

The facts on record here- I was curious so looked it up- *new members cannot link*
https://bmp.hlb.state.mn.us/DesktopM...31670&ltype=PY

It looks like he was reinstated 3/2005.

Thanks, That made some interesting reading. Good to know.

Amino Acid therapy for my father
 

Hi all ,
My father is 75 years old and have PD for about 17 years , he was using Madopar and paramapixol (Sifrol) always . About 2 years ago he stop walking , talking , eating ....
and he is in bed from that time , he had very bad condition , his last dosing was : Madopar 200/50 x 6 times a day + 3x.36 mg paramapixol . some months ago I read about amino therapy and grab whole of things needed to start the process , I read almost whole papers created by Dr. Hinz and Dr. Alvin Stein .
I am not in USA , so I forced to do all things by myself . I bought L-dopa (mucuna) , tyrosine , cysteine , b6 , folate , selenium and other cofactors from online shops and start the job .
I cant offer test from DBS lab , so I am monitoring him every hours and decide to what to do.
his current dosage of amino acids are :
L-dopa (99% mucuna - source from usa) = 18.6 Gram per day
L-tyrosine = 12 gram per day
L-cysteine= 4.5 gram per day
5-Htp = 100 mg per day
B6= 300 mg per day
I did a pill stop some days ago and it shows that my father need higher dosage of L-dopa .
His main symptoms are = confusion - agitation - delusions and sleep disorders
I don't know when he will reach to balanced dose. I should mention that his overall condition and symptoms are very better from before starting aminos.
I would like to hear if anyone else here is using higher that this dose of L-dopa .
Best Wishes
Babak

Get in contact with Dr. Stein. I believe he works with patients who are not in the usa. You will not be able to successfully treat your father without doing lab tests to control dopamine fluctuations with tyrosine. Also, you need to be certain the substances you are using are actually what they claim to be. The supplement industry is laden with false labeling which means the tyrosine or 5-htp you are buying may not actually be 100% what they say it is which will make it impossible to treat him correctly.

Dr Steins offices phone # - 954-581-8585 or email him at nobones@aol.com

If you decide to call, do it during the week. They are not open on the weekend.

I repeat do NOT do this on your own. You NEED the lab tests as well as the experience of a trained physician in this approach to be able to do it successfully. Get in contact with Dr. Stein, he does consultations over the phone so you should be able to do it.

I know all this because I am a patient of Dr. Steins for the treatment of TBI related issues.

Hi billboby21 ,
Thx for your idea , i just sent an email to Dr. Stein . Will be wait for him . Anyway i would like to know the Amino dosage of a patient with an over 15 yrs history of PD. Just for compare . Coz all of cases in this forum have a history of PD below 15 yrs. i am know that the dosage will differ for every case , just for compare.