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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Trying out Quell (wearable intensive nerve stimulation) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/226439-trying-quell-wearable-intensive-nerve-stimulation.html)

Inspiretoday 09-23-2015 08:37 PM

Trying out Quell (wearable intensive nerve stimulation)
 
Good Evening Friends,

I wanted to share something that I am trying for the first time this evening. I recently saw a Post of Facebook on a device called Quell which is similar to TENS but this is a device that you can wear all day/night. A News segment had done a story on the device and hope it was bringing to pain patients. I am always looking for hope and light at the end of the tunnel so I did a bunch of research and later that day purchased it online.

The device cost $250 which includes the sports band, a month worth of electrodes and it also has a free App for smart phones to help record therapy. If it doesn't work, the company offers a 60 day $ back guarantee. Hopefully it will work.

It came pretty quickly in the mail (2 days) and was charged up upon opening. It took a few minutes to calibrate and now as I sit here typing this I can feel little buzzes (feels like my calf is asleep).

The device works like this: You attach it to your upper calf and turn it on. It switches atomically between 60 mins of "therapy" and 60 minutes of rest all day and through the night. In the night it is much milder so not to wake you. I have pretty severe CRPS in both feet and so far this isn't hurting me. I am also thinking I could turn down the intensity but the feeling doesn't hurt.

I know this is not a Miracle and will not cure CRPS but it is my hope that it will reduce my pain and help me to rehabilitate my feet. Has anyone else tried this?

I will keep updating this post to give everyone some insight to this little device & hopefully this can bring some relief to our world of constant pain.

Here is the link for the news story http://abcnews.go.com/GMA/video/devi...-pain-33826405

The website can be found here:www.quellrelief.com

Hope everyone has a blessed week :)

Inspiretoday 09-26-2015 10:33 AM

Update…Day 3…HUGE RELIEF!
 
This is day 3 and I wanted to share an update on this product and how my body is responding. I am truly amazed by the WINS (wearable intensive nerve stimulator). I had tried the TENS prior in therapy sessions but didn't really see much of a relief. However with this… my pain has been reduced by at least 50%!!!!! 50%!!!!!!! I keep waiting for something to happen (because like all my treatments, my body seems to shift to deny what I am trying to do) but this has honestly been consistent pain relief. I knew that it wouldn't cure me but it is allowing me to strengthen my hurt foot without the ridiculous pain I have been in for the past 5 months.

It is almost comforting as well when I get the alternate hour therapies. I was nervous to sleep with it but it is so subtle when I sleep I don't notice.

I have been alternating legs to wear the Quell & I have CRPS in both feet. The first day I put it on my worse foot which I quickly switched legs because my foot seemed to be confused at first and I had some nerve "tingles" in my foot. It quieted down in about an hour & I think my nerves are happy now :)

I even forget to take my tramadol & oral ketamine because I feel so good. That has NEVER happened! I have more relief from this than the 5 blocks I had over the past year and the it's only $250. Which in the grand scheme of things, isn't too bad. The company really seems to stand by their product and offers 60 day Money Back Guarantee if it doesn't work.

Enna70 09-26-2015 12:00 PM

Quote:

Originally Posted by Inspiretoday (Post 1173620)
This is day 3 and I wanted to share an update on this product and how my body is responding. I am truly amazed by the WINS (wearable intensive nerve stimulator). I had tried the TENS prior in therapy sessions but didn't really see much of a relief. However with this… my pain has been reduced by at least 50%!!!!! 50%!!!!!!! I keep waiting for something to happen (because like all my treatments, my body seems to shift to deny what I am trying to do) but this has honestly been consistent pain relief. I knew that it wouldn't cure me but it is allowing me to strengthen my hurt foot without the ridiculous pain I have been in for the past 5 months.

It is almost comforting as well when I get the alternate hour therapies. I was nervous to sleep with it but it is so subtle when I sleep I don't notice.

I have been alternating legs to wear the Quell & I have CRPS in both feet. The first day I put it on my worse foot which I quickly switched legs because my foot seemed to be confused at first and I had some nerve "tingles" in my foot. It quieted down in about an hour & I think my nerves are happy now :)

I even forget to take my tramadol & oral ketamine because I feel so good. That has NEVER happened! I have more relief from this than the 5 blocks I had over the past year and the it's only $250. Which in the grand scheme of things, isn't too bad. The company really seems to stand by their product and offers 60 day Money Back Guarantee if it doesn't work.

Please keep us updated!

gigicnm 09-26-2015 10:21 PM

Very interested to see how this works for you.

As I read your post I'm sitting here with my TENS machine on and wishing I could move around. My TENS machine has to be plugged in. It works well, but I'm tied down by a cord.

Please us updated. I'm very interested in how this works for you over the course of a few weeks.

Inspiretoday 09-27-2015 09:15 AM

Quote:

Originally Posted by gigicnm (Post 1173756)
Very interested to see how this works for you.

As I read your post I'm sitting here with my TENS machine on and wishing I could move around. My TENS machine has to be plugged in. It works well, but I'm tied down by a cord.

Please us updated. I'm very interested in how this works for you over the course of a few weeks.

I will definitely keep you updated. I had to charge it yesterday for about two hours and my pain crept up a little.. I think I am hooked on this and it is nice to be able to move free and have it programmed to give the therapy every other hour.

happygirlpa 09-27-2015 10:06 PM

Quote:

Originally Posted by Inspiretoday (Post 1173814)
I will definitely keep you updated. I had to charge it yesterday for about two hours and my pain crept up a little.. I think I am hooked on this and it is nice to be able to move free and have it programmed to give the therapy every other hour.

This sounds very encouraging! At first i was concerned about how much it costs but as you mentioned, compared to the cost of injections, its really not expensive if you can eliminate a shot or two. Plz give us another few updates in the coming weeks. Maybe wecan negotiate a group discounted rate? Ha-ha

catra121 09-30-2015 08:24 PM

I've decided that I'm going to try this out. I responded well to TENS but it has limited use for me since my RSD spread to almost full body. Sounds like this should work (hopefully) for more generalized pain throughout the body. It's worth a shot anyway...

Inspiretoday 10-03-2015 01:08 PM

Worth a Try
 
Quote:

Originally Posted by catra121 (Post 1174691)
I've decided that I'm going to try this out. I responded well to TENS but it has limited use for me since my RSD spread to almost full body. Sounds like this should work (hopefully) for more generalized pain throughout the body. It's worth a shot anyway...

I am at a week and a half and I like it a lot. I took it off to see what would happen for the evening and my pain increased. I now have it on about 90% of the time. My medical team is impressed and don't know anything about them but they were amazed they are now wearable. Let me know how it works for you!

BioBased 10-03-2015 02:17 PM

This is a good idea if you need pain relief so you could weight bear. Anything which diminishes pain to allow for activity is a good thing, especially if over time it eliminates meds.


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