Pain in shunt site due to scar tissue
 

Hi,

I'm new to the site and this is my first question so I hope I'm doing it right! lol

I had my latest shunt revision back in December 2014. Since then I have experienced constant pain in my head around the shunt area. It feels as if someone punches me in the head daily.

I went to my Neurosurgeon, after several test and a consultation with a second Doctor they concluded it was scar tissue due to multiple revisions. Neither of them are comfortable taking out the scar tissue as it is so close to my brain and the risk for complications are very high. I tend to agree with them, I don't want to do anything until I have to do it.

I'm at my wits end trying to make the pain go away. Heat only makes it worse, oh so much worse! Pain medicine, thus far, hasn't touched it either. Cold helps for a while but who wants to go around with a cold pack taped to their head throughout the day?

I've seen several threads dealing with scar tissue pain in the abdomen but none related to pain in the head. Does anyone else deal with this or know someone who does? I need help on how to make the pain tolerable.

Thanks!

Hi Mary,

I can't help you with your condition or questions but I just wanted to say -

Welcome to the NeuroTalk Support Groups! :Wave-Hello:

take care.

Thank you :)

Hey Mary,
I too have been told that part of my continuing pain is due to scar tissue. Now from here opinions change and differ depending on the dr I spoke to. One says its scar tissue in the brain, another says it can't be as scar tissue is made up of collagen, the brain (seemingly, so I'm told) has no collagen, another says brain scar tissue causes seizures. I don't suffer from seizures. One dr says he could operate to remove some scarring but in doing so he will cause further scarring. Am I confused?? YOU BET I AM.
If you believe it is skin related there are a few crèmes and potions that can be very beneficial to loosen tightened scars, soften them some what. This may help to lessen some types of tension. I have also tried botox as an option to again loosen muscular tension. This was not of benefit to me and after 3 painful treatments it was ceased. The 'new' theory is that botox may have a longer term benefit in treating headaches and due to this I'm about to start another round of botox treatments, but I must say I'm not exactly hopeful it will have a positive outcome, but I'm willing to give anything a try.
I am sorry to say I am yet to find the 'magic potion' but if you have any suggestions, please post them.

Merl1n