Hi I'm new and I was diagnosed with a rare disease.
 

Hey, my name is Brittni. I'm eighteen and I was diagnosed with something called Stiff Persons Syndrome last Janurary. Another name for it is Stiff Man's disease.Most people get it in their forties I guess. What makes me even more rare is how young I am and the fact that I have a variant of it. Most people get it in their forties I guess.

I've been getting IVIG transfusions for the last nine months and am waiting anyday now to be admitted for my tenth treatment. I guess I'm just looking for people who can understand how draining this is for me. No one in my family seems to...

Hello Brittni, :)

Welcome to the NeuroTalk Support Groups

There isn't a particular forum for SPS here but you could check for any other posts by using the Forum Search Feature

You could make a new thread if you wanted over on the
General Health Conditions & Rare Disorders Forum

Wishing you all the best with your next treatment.

Great to meet you!!
 

:Wave-Hello: Hello and welcome, happy to see you have come to be with us, it a great place to be. We have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Check into the following forum:

http://neurotalk.psychcentral.com/forum20.html

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug: