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Three months into this
Three months ago It started with tingling in hands and feet. GP did blood glucose and B12. Glucose normal, B12 208. GP said both normal and did nothing. Waited six weeks as PN progressed rapidly returned to GP luckily he was on holiday. New GP did vibratory test and recognized low B12. Four weekly injections of B12 given. Regular GP still says it is not B12 and that it is normal. Symptoms have almost vanished from hands and feet. Also started oral B12 methyl cobalamin 1mg daily. Injections are finished but feel symptoms may be coming back. Do I need more injections?
Now going to Neurologist for conduction tests. What will they tell about B12? What questions should I ask and what tests should I request? Thanks to everyone here. It is scary to read all the posts but without this forum and pub med I would be lost. Thank God for the fact my regular GP went on holiday and the replacement was smart. Still not out of the woods as muscle twitches have started. |
I believe if you bumped up to 5mg methylcobalamin a day on an empty stomach you could drop injections.
It takes about 3 months to show improvements. You could get retested to see how much you improve. Stop all supplements about week before testing, to prevent false elevations. You should be above 400pg/ml . Many here test around 1000 after 3 months. You might consider the DNA testing for MTHFR mutations. Many people have this, and it affects folic acid too, and neurotransmitter synthesis and metabolism. |
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Hope this helps....... Cliffman |
Don't be surprised
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three months into this
Thanks for the posts. Still doing well. Will ask for MTHFR test. More after conductivity testing. Very lucky so far.
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I have had the conductivity test and it was normal. My GP didn't even phone to tell me.
After four weeks on the oral B12 at 2mg a day my symptoms started coming back so I got a vial of injectable B!2 and started doing it myself. After two weeks symptoms are reduced again. Looks like I may have to use the injectable B12 but will try holding the oral one under my tongue to see if this works. It sure is scary when the symptoms come back. I really freak out. My GP still denies it is B12 but I have seen two other GP's in clinics for injections that are more understanding. Out of six medical people in the last six months two understand PN and B12. There must be a lot of people misdiagnosed and suffering terribly. |
Yes, you are right on about that. Many do fall through the cracks and continue suffering.
If you decide to do under the tongue you need to do that on an empty stomach. The B12 (methylcobalamin) is dissolved in the saliva and absorbed orally. All oral B12 should be done on an empty stomach. (nothing much is absorbed sublingually). Quote:
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I did try the oral for a month without food for an hour but I just swallowed it so don't know if sublingual absorption will help. i will try sublingual but will inject every two or three weeks as well.
Thanks for your support.* |
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Take it first thing in the morning when you get up then have breakfast an hour later and it will be most effective. If you take it at night it may keep you awake. |
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