What does internal organ CRPS feel like?
 

I am just curious how you know when it spreads to an organ. Like the bladder, is it constantly burning like a uti when you urinate. Any thoughts or experiences?

I am as well. I'm pretty sure it is in my chest because my chest hair quit growing, after I shaved it a week ago..:/ just makes me wonder is all.

I was diagnosed with Interstitial Cystitis (Painful Bladder Syndrome), which is more common in folks with chronic pain conditions like RSD and Fibromyalgia. One of the symptoms is that burning. Google it, there is lots of good info on the web about it, especially at ic-network.com and ichelp.org.

I have full body RSD which does include organs in my case. In my experience it seems no matter if it has traveled to my heart, liver, bladder or ovaries I feel the same intense burning that for me included increasing pain medication. I was fortunate enough to be at a heart specialist clinic while having a flareup which the doctors were able to witness my heart growing at the same time my blood pressure dropped as well as my body temperature. Since then my ovaries & intestines are the only organs showing proof of my internal flareups, but at least they were documented.

If the flareup is in my bladder I flush it using cranberry juice, teas (specifically for bladder infections) for the first two-three days then after that time if it is the RSD and I put the slightest bit of pressure on my stomach the pain will increase tenfold. My doctor once told me how to tell if it's an infection but I am having trouble recalling exactly what that is & don't want to give the wrong information, but this might be something to see if your doctor can provide some insight.

I wish I had more help to give you & wish you the best of luck in getting the burning to stop.

Gentle hugs

What about the uterus? I have irregular bleeding since the insertion of an IUD(which was 1 year ago/I have CRPS in the right arm for 10 years). They said it would stop after about three months. It never stopped, just became irregular episodes of bright red to dark brown blood. I keep canceling my dr. appt., I just dont want to go! Im sure you understand.